Countrygirl
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Important survey for all in the UK regarding the consequences of GET/CBT on ME
« on: Today at 08:21:27 AM »
« on: Today at 08:21:27 AM »
The MEA has sent me this e-mail this morning as they are hoping to test the claim by NICE that GET/CBT is the best form of treatment for ME.
Please, please do participate in the survey and explain the effects that GET/CBT or earlier versions of that approach............eg as in my day
Please follow the links and all will be revealed.................I hope.
This is our opportunity to send a message to the Government and the cabal of psychiatrists who have hijacked our illness.
This email is being sent to all UK ME national charities and support groups.
We have today launched a major survey on CBT, graded exercise and pacing. Please see www.meassociation.org.uk Latest News.
This is an important survey, particularly in view of the proposed 2013 review to the NICE guidelines and we are hoping that you will feel able to help with it by bringing it to the notice of your members.
Our chairman’s letter, in our quarterly magazine, ME Essential, out this week, says “I am always keen to work with other ME/CFS organisations where there is an opportunity to benefit everyone with ME/CFS. With a bigger voice we are more likely to be listened to and heard”.
It is an anonymous survey - the email addresses only go to providers of the survey programme and are not recorded by them.
Please could you ask your members, if they have any queries, to send them to me on barbara@fernside.plus.com. Queries sent to the office will be forwarded to me and a direct email will save a busy office some work.
There will be a slight delay with the printed form but the survey will be open for at least 3 months.
Regards
Ba Stafford
Vice Chairman ME Association