Call to Action: Include Ampligen in 21st century cures legislation

[SpecialK82]

Need to send emails immediately, please share as widely as possible.

- See article posted on ProHealth by Billie Moore:

"Congress is working on something that has promise of having a good effect on getting Ampligen approved - legislation through the 21st Century Cures initiative"

http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=19246

 

[Hate ME/CFS]

Even if Congress did approve the use of Ampligen, i'm not sure that I would trust the FDA when it comes to CFIDS/ME. FDA approved drugs kill 106,000 Americans every year.

 

[barbc56]

Even if Congress did approve the use of Ampligen, i'm not sure that I would trust the FDA when it comes to CFIDS/ME. FDA approved drugs kill 106,000 Americans every year.

The figures of the number of drugs killing patients is misleading for many reasons.This article, Death By Medicine, explains this better than I can.

http://www.sciencebasedmedicine.org/death-by-medicine/

No the system is not perfect. The FDA is not perfect. But I don't know if there is anything out there that is better.

This being said, patients need to be informed, which is often easier said than done.

But back to Ampligen approval.

Barb

 

[*GG*]

The figures of the number of drugs killing patients is misleading for many reasons.This article, Death By Medicine, explains this better than I can.

http://www.sciencebasedmedicine.org/death-by-medicine/

No the system is not perfect. The FDA is not perfect. But I don't know if there is anything out there that is better.

This being said, patients need to be informed, which is often easier said than done.

But back to Ampligen approval.

Barb

So what is a non misleading number?

GG

 

[Hate ME/CFS]

So what is a non misleading number?

GG

The figures of the number of drugs killing patients is misleading for many reasons.This article, Death By Medicine, explains this better than I can.

http://www.sciencebasedmedicine.org/death-by-medicine/

No the system is not perfect. The FDA is not perfect. But I don't know if there is anything out there that is better.

This being said, patients need to be informed, which is often easier said than done.

But back to Ampligen approval.

Barb

Barb,
I wasn't trying to second guess your suggestion for patients to prod Congress to help get Ampligen approved. I just read an article about Ampligen in the National CFIDS Association's newsletter, and they mentioned the FDA quote.

 

[barbc56]

Barb,
I wasn't trying to second guess your suggestion for patients to prod Congress to help get Ampligen approved. I just read an article about Ampligen in the National CFIDS Association's newsletter, and they mentioned the FDA quote.

I think you have me confused me with the OP @SpecialK82

I'm also confused. Did I miss a quotation by the FDA? I'll go back and reread the article.

Is the newsletter available on the CFIDS webpage?

Barb

 

[Hate ME/CFS]

I think you have me confused me with the OP @SpecialK82

I'm also confused. Did I miss a quotation by the FDA? I'll go back and reread the article.

Is the newsletter available on the CFIDS webpage?

Barb

No, I don't think it is available on the CFIDS webpage. There is another CFIDS group called National CFIDS ASSOC or NCF for short, and that's where I got it from. It might be available to Yahoo or Google it.