I think I can understand the frustration. I have not read all of Adam Feurestein's work, but did read his article,
Hemispherx's Ampligen Rehash Unlikely to Impress FDA, referenced in
Ampligen: Patient's Will Determine Approval by MacJV.
I think one way to look at this is there is Hemispherx, which stands to make much money if Ampligen is approved, with Adam and MacVJ as stakeholders, not necessarily by market positions, but by their very occupations - they both get paid to write "analyst" articles. In that fashion, even though they appear antagonistic, they are kind of like groupies in that they seem to be hanging on the coat-tails of Amligen/Hemispherx, which give them something to write about.
The FDA and patients provide needed drama to make the articles that much more interesting, but neither FDA or patients are directly in line for monetary profit or loss with the fate of Amligen/Hemispherx. It is the job of Hemispherx, Adam, and MacVJ to highlight or downplay the aspects of the drama. There is ample room to say there are different perspectives here, all providing a frame of reference for their case.
In
Hemispherx's Ampligen Rehash Unlikely to Impress FDA, Adam takes a frame of reference that basically revolves around the statement:
In
Ampligen: Patient's Will Determine Approval, MacJV acknowledges that frame of reference but quickly shifts out of it by stating:
Do these people like us or hate us? I doubt that is the proper question; they are just doing a job. One could argue that either or both Adam or MacJV was doing us a favor in their presentations, just as the FDA could be seen either as a bungling bureaucratic entity or a strong safeguard for unaware citizens.
So, the whole ball of wax can be frustrating because it seems that just about everyone is motivated by something other than direct, heartfelt care of people with CFS. I do not know for sure, but would suspect that the testimonies on Dec. 20th had very little effect on the FDA decision process. They did, perhaps, give CFS people a sense of empowerment, even if it was false.
I would feel more optimism if Warren Buffett/ Berkshire Hathaway snatched up Hemispherx, but it did not happen, and I doubt it will. Maybe my views are a function of the CDC (yet another dramatic player in this game) premise mentioned by MacJV that CFS people "
showed signs of "neuroticism" defined as long term tendency to be in a negative emotional state," but I see them more likey to come from MacJV's follow-up statetement:
It's a wonder the NY Times didn't run the headline-CDC study -A scientific breakthrough: Bedridden patients found to be negative and depressed.