How did you have beta1 globulins measured? Did they suspect multiple myeloma? And, what is Pgamna globulin?I have not been able to talk to my Dr about the Low Beta1 globulin and Low Pgamma globulin yet. Thanks for bringing it to my attention again I will ask my doctor about it in my next appointment.
We're you tested for total IgG and then IgG subclasses 1-4? And IgA and IgM?
Neuropathy can be from oxidative stress. Have you tried antioxidants or reducing peroxynitrites? Peroxynitrites (oxidative and nitrosative stress) are implicated in many types of neuropathy.I was/am hoping to get applied for IVIG for my immune mediated SFN. The thing is the medical care where I live does ONLY test for length dependant SFN (ankle biopsy) and not non length dependant SFN (thigh) like I have. I did get them to test my thigh as well due to the prevalence of normal ankle and abnormal thigh in those with TS-HDS.
Results from my thigh came back very low which they admitted was abnormal but they say they don't have normal ranges for thighs here and concludes with me not having SFN
And, this lists a lot of different causes for SFN:
I'm not sure you'd get much help even if you were an MGH patient as I am, unfortunately. Good luck with your efforts.Not offering an alternative diagnosis approach like sending a new biopsy to a respected lab like Mass general or Harvard. This infuriates me to no end. I have just sent a lengthy complaint and I will do all I can do to get IVIG.
Have you looked into what infection might be triggering your autoimmunity?