Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Would I need to take B2 always with B12 or just take B2 to boost levels, then take B12 again without B2?If you are taking a complex, then you will need to isolate the offending vitamin. I just realized that one of mine contains PABA which irritates my system (makes me worse).
Keep in mind that b vitamins can suppress other b vitamins, you might have a need for say B2 as the other poster suggested. Taking B12 may be suppressing B2 etc.
Would I need to take B2 always with B12 or just take B2 to boost levels, then take B12 again without B2?
If I take a B complex activated or not, I can very irritable over everything, and can become very anxious. If I take methyl B12 I get headaches and fatigue, I also get like this with a combo of Adeno and hydroxy B12
Glad you found out about this issue from a simple saliva test!I keep feeling extra ill - the day after taking methyl folic acid of B12. Insomnia in particular
I thought maybe because artificial vitamins aren't good so I took pills containing dessicated liver instead. They are natural source of all B vitamins.
I strangely feel bad after that too, but no way as terrible as methyl folate acid.
Thank You @bertiedog I am now self diagnosed with COMPT.
I bet these genetic problems are more common in CFS patients than the regular population. They should be standard screening in all moderately affected patients.
I had to ask my doctors to give me the MTHFR test, after I self diagnosed myself with it. I am homozygous MTHFR. I didn't know about the COMPT thing.
I wish there was an easy cheap test for COMPT instead of the mumbo jumbo people do on Phoenix Rising, like interpreting test results or paying a fortune.... or Dante Labs taking an eternity to do it. It sounds like a horrible exhausting project.