August 8th - Severe ME Understanding and Remembrance Day

[Nielk]

The 25% ME group announced August 8th as a day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.

http://www.25megroup.org/campaigning_Severe_ME_Day.html

A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.

 

[Nielk]

If anyone is familiar with this group or would be able/interested to draft a short article about this August 8th day for PR, please let me know.

Thanks

 

[Nielk]

If anyone has links for stories about severely ill patients can you please post them here? Thank you. It is imperative that we raise awareness and give a voice to the severely ill.

 

[justinreilly]

Sophia Mirza's birthday.

 

[Little Bluestem]

Here is an article about Sophia Mirza for others who do not remember the details of her life and death.
http://www.dailymail.co.uk/home/you...hters-losing-battle-ME-She-went-hellhole.html