• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

August 8th - Severe ME Understanding and Remembrance Day

Nielk

Senior Member
Messages
6,970
The 25% ME group announced August 8th as a day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.

http://www.25megroup.org/campaigning_Severe_ME_Day.html

A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.
 

Nielk

Senior Member
Messages
6,970
If anyone is familiar with this group or would be able/interested to draft a short article about this August 8th day for PR, please let me know.

Thanks:)