You can view the page at http://forums.aboutmecfs.org/content.php?71-Lightning-Strikes-a-CFS-Patient
For me, I simply feel obligated to publish any recovery story that appears to be legitimate in hopes that it will help someone. Berit and I were in contact before she tried LP and I believe her story. Some of the comments about the program are eye-openers and I wish we had her here to give her perspective.
I certainly derive benefit, not a cure, from similar techniques. I believe anything that helps turn down the 'stress response' and sympathetic nervous system functioning can be helpful.. Unfortunately 'cures' using any type of therapy - behavioral or otherwise - appear to be all too rare in CFS.
"During the three sessions I was encouraged and persuaded to believe that there was nothing actually wrong with me and that I could 'coach' myself back to health. Phil told us that we were not really ill but had got trapped into a cycle of thinking and believing that we are ill which sustains itself. ie. if you concentrate on your symptoms all the time, then you're going to keep having them. You are instructed to stop thinking about your symptoms and to get on with "living the life you love". I was to think of myself as healthy and behave as if I was healthy, ignoring the symptoms and "getting on with it". I trusted in this advice and followed it completely, and as it turned out, to my severe detriment. My relapse was obviously caused by drastically overdoing it physically in the following five weeks."
"Phil told us our symptoms were not evidence of anything sinister, could be ignored and that we would not damage ourselves by following the technique"
"The first thing was to take responsibility for our illness. I had to stop saying I had M.E. Instead I have to say I am 'doing M.E'; I wasn't tired, I was 'doing tired and doing muscle aches' - the implication being if I am doing it I can stop doing it....In the afternoon session we were told that the reason we had M.E is that we have negative thoughts.
...The tutor said that if we tell people about the process if won't work. That's right, to talk about the process means it can't work for you. She also told us that no matter how she feels she tells everyone she "feels fabulous".
"Serious questions over ME 'therapy"; Rugby Times (UK paper), 7th October 2008
I TOO did the Lightning course like Carol Ward (Rugby Times, September 30) and can honestly say that I do not believe it can permanently cure a physical illness.
It may be good for positive think*ing and changing the life of people with emotional and psychological issues, maybe even people with ME who are getting better but don't realise it, but not those who are still badly affected.
I was subjected to the therapist talking for five hours before he even got around to telling us what the actual Lightning process consisted of. This was far too long for some*one with ME who was still ill and everything about it was geared to positive thinking and positive moti*vation.
When I realised what the Lightning process actually was, I was amazed at how stupid I'd been to believe it was a cure. I know others who feel the same way but, by blaming those of us who don't get better or who relapse after a time, Lightning course practition*ers keep up the facade that the majority of people get better. They don't. I was told there would be plenty of breaks during the first long day there weren't.
I was told that listening to the therapist for those five hours could*n't exhaust me as I hadn't done any*thing but mental fatigue is as much a part of ME as physical fatigue, something the therapist should have known if he'd really had it himself, as he claimed. I was told to do the process for 100 times that night I barely had the energy to eat my dinner and get to bed. And I was told that 96 per cent of people with ME got better and the four per cent who did not had a vest*ed interest in being ill, which was why they didn't.
As a friend said to me afterwards, "Well, if it was a cure for ME, why do they have to charge so much for it?" It's a business, that's all. There were eight people with me on the course, all paying 540 each a tidy sum for the therapist for three days' work. The hype sur*rounding it is unjustified, although really the hype is part and parcel of the "therapy".
KAREN RIPPON
By email
CAROL Ward will be grateful for the free advertising your article has given her (Rugby Times, September 30) as she embarks on her new career as a Lightning process practi*tioner.
This questionable "therapy" is a very expensive form of positive thinking and there is no way it could cure the serious neurological illness myalgic encephalomyelitis any more than it could cure other neuro*logical illnesses such as MS or Parkinson's.
The Lightning process could cause great harm as it encourages participants to increase their activi*ty levels without treating the under*lying physical cause of the illness, which research is proving to be an ongoing infection. I know two fel*low ME sufferers who have been put into major relapses by doing it. If it were not potentially harmful it would be a useful diagnostic tool to distinguish those with fatigue-causing mental problems, who might actually benefit from it, from those who really have ME.
We ME sufferers need biomedical research (the government has not invested a single penny in it so far) and biomedical testing and treat*ments, not more unscientific psy*chobabble. We already have far too much of that.
H PATTEN
Frome, Somerset
EVERY article about the Lightning process (Rugby Times, September 30) I have ever seen has one thing in common: the subject of the piece always goes on to become a practitioner themselves and, con*sequently, benefits from a page of free advertising space.
The Lightning process has no sci*entific evidence to support it; is not authorised by any medical authority; is a very secretive organisation, run by a heterogeneous group of people with no recognised qualifications; and is expensive beyond the reach of most people with ME in receipt of disability benefits, who have about the same to manage on for a whole week as it would cost for an hour's session with a self-styled "life coach".
The Lightning process is really only proven as a successful pyra*mid-sold venture, which is making its founder, Phil Parker, a million*aire at lightning speed.
Dr JOHN H GREENSMITH
ME Free For All.org
Bristol
"On the first day, the trainer made my daughter stand up to learn the process, which was a very difficult as my daughter currently suffers from severe leg weakness. The trainer ignored the fact that my daughter’s legs were giving way while she was trying to learn the process. My daughter's confidence in the trainer took a severe blow.
On the second day my daughter insisted on sitting down to learn the process. The trainer reluctantly let her, but was not happy and said that she would have to start to challenge her beliefs. We were there to challenge our beliefs; I would not have paid many hundreds of pounds if we were not prepared to do this. On this occasion, the trainer missed out some of the process, and spent longer teaching the other girls who had no problem standing up.
Following completion of the process, I wrote to our practitioner raising my concerns because when we tried to ask questions during the sessions we were immediately told to stop. She replied with a letter, which in my opinion was insulting with grossly incorrect accusations. She also avoided answering many of my important questions. If the training doesn’t work, you are told it is your fault – you have not done ‘the work’, they take no blame whatsoever.
We went to the LP with full believe and high hopes. Our trainer accused my daughter of not doing the process properly, and that she didn't want to get better. How dare she say that of course she wants to get better and she has worked so hard trying to get this to work! She also said that 'it worked for everyone else' - I would love to know if this really is the case! My daughter was in hospital 2 months ago, which is when a relapse took place. Our trainer shunned this information, as irrelevant. In my opinion the process is nothing radical and very expensive for something that may not work.
http://www.healthboards.com/boards/showthread.php?t=486103
Phil Parker is already known to many as an inspirational teacher, therapist, healer and author. His personal healing journey began when, whilst working with his patients as an osteopath. He discovered that their bodies would suddenly tell him important bits of information about them and their past, which to his surprise turned out to be factually correct! He further developed this ability to step into other peoples bodies over the years to assist them in their healing with amazing results. After working as a healer for 20 years, Phil Parker has developed a powerful and magical program to help you unlock your natural healing abilities. If you feel drawn to these courses then you are probably ready to join
...... This module looks at the use of divination medicine cards and tarot as a way of making predictions. From a healing perspective, divination is useful in creating a strong connection with healing/spirit guides. It can also help you to understand the spiritual background of a client, which may be essential in helping with a problem. If a client comes to you feeling they have been cursed, you may need additional information about their past lives in order to help them and this is where the use of tarot/medicine cards is beneficial.
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