You can view the page at http://www.forums.aboutmecfs.org/content.php?114-An-MD-on-the-Lightning-Process
Posting from the webpage:
Cort, would you give consideration, please, to posting a note on both pages where your most recent Dr Frivold blog posting appears pointing out that there are two comment threads running in parallel in response to Dr Frivold's opinion piece and that one of those threads (this one) also appears as a forum thread?
Some members are posting in the blog version here:
http://www.forums.aboutmecfs.org/entry.php?364-An-MD-on-the-Lightning-Process
unaware of the comments that are being posted in the second version (which displays as a forum thread) and vice versa.
Thank you.
Suzy
Posting from the webpage:
Cort, would you give consideration, please, to posting a note on both pages where your most recent Dr Frivold blog posting appears pointing out that there are two comment threads running in parallel in response to Dr Frivold's opinion piece and that one of those threads (this one) also appears as a forum thread?
Some members are posting in the blog version here:
http://www.forums.aboutmecfs.org/entry.php?364-An-MD-on-the-Lightning-Process
unaware of the comments that are being posted in the second version (which displays as a forum thread) and vice versa.
Thank you.
Suzy
This has confused me. Do you mean that there is space for comments on all front page articles and that they all have their own separate threads too? Just an opinion, but it doesn't seem very foggy-friendly :worried:
Right Bob said Flex? Right Flex said Suzy. Right Flex said Fred? Right Fred said Flex!!
...I'm too sexy for this thread..
I'm typing in my bed..
so sexy..
..and I'm too sexy for this thread...
i've got a brain fog head...
so sexy....
...Cos I've got ME...
..you know what I mean...
and I took a little turn at the bus stop...
yes at the bus stop you know what I mean
...I took a little turn at the bus stop....
Or would it be a good idea to merge the two threads?
Hi, i find it all quite sad that you are all putting something down most of you haven't tried. I appreciate it's expensive but i was willing to pay at all costs to give it a go, isn't it as simple as that? None of you are going to drop dead by trying it.
It worked for me but not my 12 yr old son as some of you who were following my story will know. I could of given up with it after 3 weeks and said it's not working for me, but luckily i had phone support to keep me going (not LP trainer support i might add), thank goodness i kept going, as i'm now back at the gym and feel pretty much completely better, it's been amazing for me, but not easy.
I think it's a difficult thing to recommend to children, i don't think most will realize the work they have to put in to make it work. It's very disappointing to us as a family that it hasn't worked for our son, but we have been promised help when he is older.
I'm still on the list for the uk XMRV test as i still believe we could be positive.
I tried to keep giving my updates on here but gave up due to upsetting remarks back. i'm still in contact with a few of you by email who are following my progress with interest.
I certainly have no connection with the LP at all! I urge any of you to give it a go like i did. There is no way in my opinion it could make anyone worse, i just can't see how it could.
I took the opinion before i did the LP that i was fed up hearing negative comments on something that people hadn't tried themselves. Every time someone said it had worked for them they seemed to get abuse, it's ubsurd. Please refrain from commenting on something you know nothing about, you are stopping a lot of people on the forum from giving it a go and maybe getting their life back. I'm saying this knowing it worked for me but not my son (my son wasn't even doing the process, he gave up straight away).
I just get annoyed now when i hear so many jibes at it, i still don't know how it worked for me really, it just did, and yes i had been diagnosed with ME.
If we stick to top quality debate then we will avoid the accusation of posting 'malignant' comments
The Lightning Process - comments
I am happy to read that Dr. Frivolds wife has recovered from her medical problems doing the Lightning Process. However, if Dr. Frivolds wife had become totally bedridden, needing constant care day and night, in constant pain and extremely sensitive to light, sound and touch as a result of doing the Lighting Process (LP), I wonder if he had made a posting on this site to inform, or perhaps worn people about what can happen to some people doing the process? Lightning Process for ME patients is a bit like Russian Roulette. It depends entirely on the diagnosis - whether the patient has ME, CFS, CF, neurasthenia or some other condition which can give similar symptoms. There are no diagnostic test for ME/CFS. It is a well known fact that CFS or ME/CFS has become a collective term for anybody with symptoms of fatigue - and in particular in Norway where the "Wessely school" of doctors are very strong and are in favour of the bio-psychosocial model, the NICE Guideline and are against any thorough investigations for underlying infections, immune dysfunctions and other possible causes. Sadly the media in Norway has given the Lightning Process an awful lot of free advertising, and refused to tell the stories of the many who have suffered the opposite effect of what is claimed because "this would ruin the miracle cure". Many of these patients are now too ill the tell their stories.
The marketing of LP has indeed been very successful - so successful that most people believe that it takes only three day to get rid of ME if the patient wants to and is motivated enough. Health personnel, without any knowledge about ME, or the patients medical history or situation, recommend LP without any reservations and persuade them to take up loans and try LP. If the patients have reservations, they are looked upon as giving signals that they have themselves to thank for not getting well. Some benefits offices in Norway offer to pay for the LP course, although it is against their own rules and regulations to pay for undocumented treatments. And at the same time, patients are denied their rightful help and benefits. Through Phil Parker and "Aktiv Prosess" in Norway, where the practitioners have no medical qualifications, the patients are not covered by medical laws and ethics because they are marketing LP as training and not as treatment. The patients must take the responsibility for the training themselves. In other words, it is possible for people, without any medical education or background, to ask very ill people to ignore the signals from their bodies. The LP practitioners are not taking any responsibility for what might happen to them.
As yet, there are no studies done to substantiate Phil Parker and Aktiv Prosess results, nor any follow-up studies to show how the LP participants are doing after 12 or 18 months. Many participants are struggling. To friends and family they have announced that they have recovered and must not be looked upon as ill. If their symptoms get worse as they are increasing their activities, they get into an explanation-problem situation. Their symptoms are no longer looked upon as an expression of disease, but as a result of that they are not able to stop "doing ME" and are not motivated or good enough to do the training. This can feed self-contempt. Previously psychologically stable people have become deeply depressed. They continue to push themselves physically and mentally even when their symptoms increase. Some have become extremely ill. They seem to have lost the ability to listen to their own bodies, and drive themselves into deterioration. These patients will need a different type of coping strategies and "off-learning".
The Lightning Process should be of great concern to all - especially seen in the light of biomedical research on ME which have uncovered many biological markers.
Ellen
... your post starting on "The Issues" was very good, a great summary of the key points people are concerned about. Like you I am also worried about people being exploited.