I send them that great video on the history of ME/CFS, the White House Chronicle, and other stuff to get them to read (maybe) and get other info to them. I don't just do the what have you done thing, but I do do something everyday - I like this idea and we do need to fill up their mailboxes and get their attention. Next I will do the fax and phone call thing. Didn't think of that!!
Hi GlenP, it said that also when I sent it, but when I went back to my email box to click on the "cofirm fax" link it said a few minutes later that it could not be delivered. Maybe I did something wrong.
Did he get so sick of us he changed this fax number?? LOL
Kathleen Sebelius is giving $7 million to health care centers for the underserved- but will ANY of that money go to ME/CFS?
A $7 million donation to a center for ME/CFS research center is what we need.
Your representatives! Your Senators, Congressperson, state legislator(s) for your area. If they are hearing from constituents on this issue, it makes a difference and gets the issue on their radar screens.
On behalf of the organizers of the "Time for Action" campaign, I briefly want to say that we will be reporting back on the CFSAC meeting and our impresssions of Dr. Mangan as soon as possible. Please bear with us; we are still recovering from the CFSAC meeting.
We have a lot of good news to share and will explain why we feel that it's time to stop emailing NIH with our previous message.