Did it. Also sent my bi-weekly email to Tom Frieden at the CDC and included Kathleen at HHS and Tom at NIH. Sent them Hillary Johnson's blogs so that they can see what is going on and what is being said - publicly now.
The cat is out of the bag with the newest "deliberate infection" and the 40 more that Collins said were also done during that time period. So, the big question is: Are WE part of those experiments and a bigger cover-up from the CDC? We need to push to find out if indeed we are one of those on the 40 project list.
But, I too will be sending those above daily emails. This first round I gave them a quick overview of who my husband and I are/were. A little background that they were dealing with Washington types IF they bother to read the emails. No matter, hit and overflow those email boxes and force them to look and see what keeps filling up the boxes.
Great idea. Loved it when I saw it. You never know WHAT type of advocacy will work or get attention. Tina made all the right points in a post on Advocacy and that we need to all do our thing as more is better. And she is right. More hitting at them from all areas is better.
Great idea guys - I'm in! Oh, also did the Craigs List idea and did in fact go looking for a doctor with ME/CFS background for my area. Like that idea too. I'll go for any idea - out of the box ideas I really like.
Finally, I have to do it. Our new website is up.
It is stunning. There may be a small bug or two but the website is so stunning and professional that you can't help but be thrilled and excited.
Our website address is
http://www.mcwpa.org
Our Patient Discussion Forum is
http://www.forum.mcwpa.org
If you have problems or bugs, please contact us here (muffin or usedtobeperkeytina) Tina Tidmore - or via the causes site which is stilll up and will remain up.
http://www.causes.com/causes/511536?m=f042604e
Also note we are about $600 give/take away from getting our $8,500 for our 1/2 page Washington Post. So we are nearing the real big time. Next up will be release of the ADs for review - then we hit the Post. Hard.
Anyway, didn't mean to ramble and steal from these guys - Bravo, great idea, and I'm DOING IT!!! (Did it) :victory: