@undiagnosed This is a global problem, many countries have, Japan, Southeast Asia, Russia, Africa, China, have to ask the state to help, we must unite, I believe will be the government's financial help
Last edited by a moderator:
Anyone here used HIV/AIDS treatment for CFS?
- Thread starter sorin
- Start date
heapsreal
iherb 10% discount code OPA989,
- Messages
- 10,219
- Location
- australia (brisbane)
Viread is affordable but raltegravir is costly. Id like to add it to viread and see of i can squeeze mote o
Improvement.
Improvement.
undiagnosed
Senior Member
- Messages
- 246
- Location
- United States
@a5610183, I'm not sure we'll be able to count on any significant government funding in the near future. Most of the research so far is being funded privately. The government agencies I've communicated with don't give a shit.
undiagnosed
Senior Member
- Messages
- 246
- Location
- United States
@heapsreal, Are you paying out of pocket? Not sure how things work in Australia? In the US, I could get Truvada under the guise of PrEP that would probably be covered by insurance. However, I would prefer Descovy (TAF+FTC) which wouldn't be covered in that case and would be unaffordable. Also, any of the newer integrase inhibitors like Tivicay would be way too expensive as that also wouldn't be covered without a diagnosis.
wow I really am thinking of trying a prEp/HIV medicine as I can easly get it here in the UK from safe online pharmacies verified from a London clinic. I am just worried it would just make me worse. I'm so desperate to try anything atm tho as I am 80% housebound. Do you know if there are any major risks?
Daffodil
Senior Member
- Messages
- 5,879
in Canada, I got the drugs right away as soon as the doc prescribed them. I think they assume you have HIV if you are prescribed the medicine. No one asked for proof.
But then again, I had private insurance for prescriptions so maybe that's why
I think Tenofovir is prescribed for Hep C too...or Hep B? cannot rememebr
But then again, I had private insurance for prescriptions so maybe that's why
I think Tenofovir is prescribed for Hep C too...or Hep B? cannot rememebr
ScottTriGuy
Stop the harm. Start the research and treatment.
- Messages
- 1,402
- Location
- Toronto, Canada
I have been on at least 3 ARVs for 15 years. I've had ME for 4.5 years, so it didn't prevent ME. I also had 2 complete remissions during that time.
I have very occasional nausea from the ARVs, but minor league compared to ME symptoms. (I started on AZT back in 2000, and it was a lot of nausea.)
I've wondered if the ARVs have prevented me from being a lot sicker. Although I was house bound for a month 1.5 years ago.
As an aside, I was chatting with a colleague the other day and he was having trouble finding HIV participants for his research because the criteria was a CD4 count less then 350. (He's testing a probiotic in those folks to see if it impacts CD4s.) I think that's a testament to the effectiveness of ARVs on HIV. So many HIV treatment options, so much HIV research funding, so hard for me to work in it with ME when we have so little.
heapsreal
iherb 10% discount code OPA989,
- Messages
- 10,219
- Location
- australia (brisbane)
I self treat with viread as no dr would do this in australia without losing their license. I buy viread online but get regular blood work.
My doctor prescribes famvir so i get regular blood work to check liver and kidney function for that which would cover any potential issues from viread.
Last edited:
Daffodil
Senior Member
- Messages
- 5,879
@ScottTriGuy they do notice a lot less MS in people on HIV meds....
ScottTriGuy
Stop the harm. Start the research and treatment.
- Messages
- 1,402
- Location
- Toronto, Canada
That's interesting, wonder what's going on there?
- Messages
- 1
That is something that have hunted Me/cfs as the main cause for many years, since the very first outbreaks.
Now is in the spot light again,
A lot of people using ART,s are getting good result, just the right ones , carefully monitored at the right doses.
Has the viread/tenofovir improved your CFS/ME?
heapsreal
iherb 10% discount code OPA989,
- Messages
- 10,219
- Location
- australia (brisbane)
Yes very much so. Im alot more active. If 10 was normal then im an 8 or a 9??
The disease is worldwide, in Thailand, the United States, Russia, Japan, Britain, China, the infectious disease is very strong, the government suppressed the world to suppress, I hope that our patients together, united, this Disease is associated with the political and economic, and vaccine-related, hope that we all around the world on the same front, to find out the truth of this disease. This is my e-mail a5610183 at outlook dot com once again that this disease alone will not succeed in a country
Last edited by a moderator:
Recently, okay? I can not reach you, do not know how to send you private letters
Daffodil
Senior Member
- Messages
- 5,879
maybe those who are treating early enough can get better with just ARV's....before some kind of bacteria has taken hold due to weaker immune system? or a herpes virus...
maybe the ARV's are acting on HERV.....
but then the disease seems to be contagious sometimes....
but then sometimes not....
ugh same circles I have been going in for decades.
maybe the ARV's are acting on HERV.....
but then the disease seems to be contagious sometimes....
but then sometimes not....
ugh same circles I have been going in for decades.
heapsreal
iherb 10% discount code OPA989,
- Messages
- 10,219
- Location
- australia (brisbane)
Sometimes it seems pointless trying to understand how things work or on what. If u take something and it helps , stick with it. It will be decades before real research finds descent treatments???