vision blue
Senior Member
- Messages
- 1,877
I feel like recurrent virus since 2014 is giving me my dysautonmia symptoms but no one will listen. if i here the word "impossible" one more time, i might scream. I'd like to know if anyone has anything similar.
Recurrent Little blisters with nerve pain (suggests a herpes virus, zoster? simplex?) in 2 places (chest near breast and on forehead) . the blisters themselves are trivial (and no longer burst open when reoccur) but the symptoms that come with it are devestating including sympathetic excess, high blood pressure spikes, sensations that my head is flying all over the places when sleeping or dizzy when awake, pain along distribution of one of the cranial nerves (on bridge ofnow), feeling that someone shocked my heart with a de-fibrillator (often duirng the night but leads to lasting things0> Heart rate accelerates with changes in position, but also dropeed at rest.
If it wasn't that symptoms at the beginning were wiped out by antivirals (which i could not tolerate and can no longer risk), i'd wonder if it was somehting else and not a herpes virus. not sure if any other can do those symptoms of the blisters and nerve pain besides zoster and simplex?
becaue i had a full 2 months w/o a recurrence and symptoms were subsiding it was like being hit by liighening bolt when virus returned aburbtly and bringing with it all the other symptoms with heart and worsening bp etc etc.
Over the years of this, especially in beginning, i went to 3 infectious disease doctors, spoke to one more by phone (the best by far, also a researcher) and one by email. and of course read a bunch.
so damn discouraged. this was just a bonus disease i got 5 years ago, likely from two many doctor visits. was alredy a zebra before this. these symptoms are so damm awfi; though and have them right know as i type and I do think these dysutonomia symptosm are dangerous plus herpes does kill people- just goes quietly unrecognized
Any other zebra in this pasture?
Recurrent Little blisters with nerve pain (suggests a herpes virus, zoster? simplex?) in 2 places (chest near breast and on forehead) . the blisters themselves are trivial (and no longer burst open when reoccur) but the symptoms that come with it are devestating including sympathetic excess, high blood pressure spikes, sensations that my head is flying all over the places when sleeping or dizzy when awake, pain along distribution of one of the cranial nerves (on bridge ofnow), feeling that someone shocked my heart with a de-fibrillator (often duirng the night but leads to lasting things0> Heart rate accelerates with changes in position, but also dropeed at rest.
If it wasn't that symptoms at the beginning were wiped out by antivirals (which i could not tolerate and can no longer risk), i'd wonder if it was somehting else and not a herpes virus. not sure if any other can do those symptoms of the blisters and nerve pain besides zoster and simplex?
becaue i had a full 2 months w/o a recurrence and symptoms were subsiding it was like being hit by liighening bolt when virus returned aburbtly and bringing with it all the other symptoms with heart and worsening bp etc etc.
Over the years of this, especially in beginning, i went to 3 infectious disease doctors, spoke to one more by phone (the best by far, also a researcher) and one by email. and of course read a bunch.
so damn discouraged. this was just a bonus disease i got 5 years ago, likely from two many doctor visits. was alredy a zebra before this. these symptoms are so damm awfi; though and have them right know as i type and I do think these dysutonomia symptosm are dangerous plus herpes does kill people- just goes quietly unrecognized
Any other zebra in this pasture?