Anyone else a walking storm detector?

[Inca]

Hi @Inca......a small suggestion only. Dr. Leonard's Catalog often has products for sick people. I'm sure it's online. I have very cold hands also and always have those wood mittens (mittens are supposed to be warmer than gloves) around. I'm sitting on a pair right now! Some have a little cap that you can pull over the ends of your fingertips....they're a really big help.

If you can't find them via the catalog, then look on Amazon. I know exactly what you mean. I found a windfall many years ago at Target and Walmart in the after-Xmas sales. Still, I have to admit that my fingers aren't
exactly toasty.

If this helps you or someone else, then I'm happy. Are you getting around at all these days? I hope so. Yours, Lenora

Sorry completely forgot I had replied on this post! ..I think the companies you mention are in the US.. (I am in Europe)

I do have some fingerless mittens that have the 'cap' that you can put over fingers..I use them with some touchscreen gloves underneath so if I need to use my phone in winter when out on scooter I can just pull the cap back and my fingers are still covered but can still use phone if I want to take a photo (of dog usually!) or answer a text message.

I still have my mobility scooter and get out most days with my dog. Fortunately I don't have to endure such severe weather these days as my dog has arthritis too so when its raining heavy or very cold he is also suffering the effects of stiffness and swollen joints....so we have a 'rest day' and I bring out toys and puzzles he only has on those days.


He loves his puzzles and can even do simple baby puzzles such as shape sorting, stacking toys and the little wooden jigsaws (with the wooden knob so baby can lift it up)...he can do toys up to about 18 months old ..he doesn't know the alphabet or anything. I buy simple traditional wooden puzzles off ebay when I see them. He can also empty my washing machine and dryer and pick stuff up for me (safe stuff.. socks, his toys and put them in toy box etc).

Other puzzles are traditional treat dispensers/interactive puzzles for dogs though he can empty most in seconds! It's a challenge for me to find something that will challenge him! His IQ must be off the Doggy IQ charts!!

 

[lenora]

That's quite the dog you have there, Inca. Is he/she a service dog.....sounds like it.

So you have live-in proof that the weather can affect us in many ways. Too bad your dog can't cook. That's cute about the puzzles. Well trained....or spoiled, or perhaps both. I'm glad you're together. Yours, Lenora

 

[Inca]

That's quite the dog you have there, Inca. Is he/she a service dog.....sounds like it.

So you have live-in proof that the weather can affect us in many ways. Too bad your dog can't cook. That's cute about the puzzles. Well trained....or spoiled, or perhaps both. I'm glad you're together. Yours, Lenora

Thanks..he is spoilt yeah...Not an official assistance dog rules are very strict about that over here, as I got him from a puppy and have been mostly housebound by then (other than walking them with mobility scooter) he doesn't have the socialisation needed to be able to 'work in public' in an official capacity. He's also not an accepted breed.

He's very smart though got his first puzzle at 4 months old and I'd also trained my older dog to help me round the house so he learned from watching her.

Photo is of JJ at 4 months old watching Inca unload the tumble dryer

 

[Nord Wolf]

Once again, a great confirmation of how much pressure hits me. For two weeks we had beautiful weather, the best since last May actually. It was dry, sunny with average barometric daytime pressure of 30.50! Yesterday we got slammed with the big rain storm and cold front that covered the entire Northeastern USA. The pressure dropped in 24 hours from 30.45 to 29.35. Still today with the temps at 53 F, windy and partly cloudy, the barometric pressure is still only 29.42.

About 3 hours after the pressure started dropping my usual lightheadedness and brain fog increased dramatically, my already screaming levels of tinnitus elevated, my hearing dimmed and I needed to turn my hearing aids up. Also, full body ache and pains shot up, inflammation kicked in, my respiratory system swelled up and I had to use my O2 machine for 8 hours a day as opposed to my average 3 hours. The full body fatigue and heaviness has been brutal with the drop n pressure… I feel like my body is a wet sandbag. Also, my vision loss has been constant ever since the start of the pressure drop. This is all being dictated, which has become my norm this year anyway, but the state of vision loss fluctuates day to day and throughout the day, but with this severe drop in pressure it has been constant because of the extreme drop in brain blood pressure (in my case).

Oh yes, and I had terrible insomnia last night from the low pressure.

 

[Inca]

I have awful Tinnitus as well @Nord Wolf its constant I thought it was cos I’d had covid but recent hearing test showed I have further hearing loss and audiologist said that’s probably why can still hear it even with hearing aids in.
I’ll be getting a new pair but it takes about a month as they need to make me some new ear moulds too. I didn’t think of barometric pressure affecting it.

I heard if had something to do with GABA neurotransmitters so I’m trying to read more on that and thinking of trying some GABA supplements to see if they will calm the brain and reduce the Tinnitus.

 

[Nord Wolf]

@Inca - yes, tinnitus sucks! I have a thread on hearing loss and tinnitus:
https://forums.phoenixrising.me/threads/hearing-loss-vision-loss-whats-next.89897/#post-2434367

I take GABA daily and have for a couple years and never noticed any changes in tinnitus levels. My hearing loss is due to inner ear damage, which causes the brain to try filing in sound it can no longer hear = tinnitus... but so many things cause my tinnitus to increase; stress, barometric pressure, flair-up of dyasutonomia, PoTS, and or M.E.

 

[Inca]

I know the right side is hearing loss its constant unless hearing aid is in ..though since getting covid i can still hear it but hopefully with new aids I won't be able to.

if I have energy to focus on something for a while either on video game or researching/reading I don't notice it for a while until I stop but I can't keep it up for long before feeling tired. I often push myself cos I know even if I stop to rest I can't switch the T off. ..so make myelf s tired as I can and take a sleeping tablet so I can fall asleep regardless of Tinnitus level!

 

[Violeta]

I too feel worse before it rains when the atmospheric pressure starts to decrease.

The atmospheric pressure drop theory in my case is also supported by the fact that I feel better at night time when pressure increases.

Obviously, there is something wrong with our cardiovascular systems which react excessively to those changes in atmospheric pressure.

You are right about it affecting the cardiovascular system, since reading this thread and being more away of what's going on I have noticed that when lows move in I feel as though there is heavy pressure on my heart, or I can describe it as feeling that my heart has been removed. It's very weird.

 

[Nord Wolf]

I know the right side is hearing loss its constant unless hearing aid is in

Do they/you know what caused the original hearing loss?

 

[Inca]

Do they/you know what caused the original hearing loss?

I was born with my thyroid not working ..when I was under the childrens doctor he always had me on a higher dose of thryoxine so my growth wasn't stunted or become intellectually impaired..when I switched to adult doctor at 17 years old, he said dose was far too high and lowered it...I started losing hearing from then. Oddly though I did not experience Tinnitus then it has only been these last few years..I thought it was due to covid vaccines or maybe drop in estrogen with going through peri menopause...but apparently there is a difference since my last hearing test.

 

[Rufous McKinney]

I was listening to a you tube video interviewing a German doctor about tinnitus.

and then this Ted Talk from Australia.

1) the German doctor claims most tinnitus is: you tuning into your own internal noise, so you need to STOP tuning in;

2) the Ted Walk woman, working on her PhD, indicated that it (some forms) is tied to like the Phantom limb phenomenon. When you experience hearing loss, the brain is "filling in" and the circuits are not getting input any longer, so they generate these sounds. And thats coming in from the Frontal Cortex, which they did not know was involved.

Possible future treatment is focused on the Frontal Cortex.

@Inca

I can't really tell what is going on with me, I have some hearing loss, especially high tones, and my "tinnitus" may not even be real tinnitus (because an actually ringing tone CAN appear, but they are temporary.)

 

[Inca]

I was listening to a you tube video interviewing a German doctor about tinnitus.

and then this Ted Talk from Australia.

1) the German doctor claims most tinnitus is: you tuning into your own internal noise, so you need to STOP tuning in;

2) the Ted Walk woman, working on her PhD, indicated that it (some forms) is tied to like the Phantom limb phenomenon. When you experience hearing loss, the brain is "filling in" and the circuits are not getting input any longer, so they generate these sounds. And thats coming in from the Frontal Cortex, which they did not know was involved.

Possible future treatment is focused on the Frontal Cortex.

@Inca

I can't really tell what is going on with me, I have some hearing loss, especially high tones, and my "tinnitus" may not even be real tinnitus (because an actually ringing tone CAN appear, but they are temporary.)

The Ted Talk woman makes more sense! I've also heard its about brain filling in and my audiologist explained it that way to me.

 

[lenora]

Makes sense of a sort. I guess you just need a few more rock concerts, Rufous, or anyone.

I'm beginning to think it simply appears with age and some nerve involvement. Often a good manual therapy osteopath can make these things better, if not cure them.

Are you still thinking of getting a hearing aid? Different people lose pitch sounds at different times. I have tinnitus that comes and goes and it's not getting an invitation to stay.

I wish there was an easy answer for all of you. Hear ye? Yours, Lenora