Anyone been to UAB or know someone that has? (Jared Younger)

Belbyr

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I don't live too terribly far from him, about 2.5-3 hours. I watched his recent speech at the NIH and I believe along with him, that these brain scans mights actually be a diagnostic tool for ME/CFS. I really wish I could get scanned just to see if there is anything going on.
 

Billt

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I took my son there for a scan. They were super nice and believe they are really trying to find answers.
However after repeated attempts to get any results they never contacted me back like they said they would.

That was awhile back so maybe things are different now
 

Billt

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I tried several times with them . always told they would get back with me. i don't think there was anything out of the ordinary, maybe that's why I never got anything. But do think they are trying and doing valuable work.
We need all the research we can get.
My son continues to decline with new and different symptoms every few weeks. But nothing goings away.
We are self treating to the best of our knowledge at the present