Please note: Posts from this thread were originally on this thread. The thread was split order for members to be able to continue their discussion re: angry patient emails to the NIH.
Yes, I'm sure when Dr. Nath or Dr. Collins sees the 400th e-mail with the subject "WHY ARE YOU TRYING TO KILL ME PATIENTS!!!" and "WALITT IS TRYING TO KILL US HE MUST GO!!!!!" they are going to take a minute out of their day to see what reasoned, insightful point the writer is making.Trust is irrelevant. We need them to do their jobs, not be drinking buddies. People have the idea that if we just ask nicely, or use exactly the right argument and evidence that they will just have to listen. If that were the case then the illness would've been dealt with properly 30 years ago.
We are dealing with a very entrenched policy. The policy will not change until the social cost of maintaining the policy gets too high. Asking nicely and writing letters to Congress will not move a policy this well defended. Like NIH's Dr Nath said, we need to ACT UP. That was an amazing statement, considering that NIH was a major target of Act Up's criticism.
One wonders just what the hell is going on behind closed doors. We desperately need a whistleblower to reveal who is really making NIH policy.
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