An open letter to Psychological Medicine, again! by D Tuller et al

[lilpink]

Can we get everyone to ask on AFME on Facebook if you are on it. What they gonna do. Delete everyone.

I think they have already. I don't know anyone still able to post there.

 

[AndyPR]

Lets see how long this one lasts.

 

[Yogi]

I remember last September AFME and CMRC hijacked all the excitement of the day and launched their dodgy OMEGA petition.

Maybe with all the excitement of #MillionsMissing and #MEAwarenessday if it gathers momentum on Facebook and Twitter then we can hopefully get rid of AFME and that wretched parasite Sonya Chowdhury. That would be a great achievement of MEAwarenessday!!!!!

This was my thoughts then in Sept 16:

I am still a bit annoyed at the MEGA and the conduct of the CMRC and not surprisingly the patient group representative AFME over the disastrous launch of MEGA and a random petition.

A few months ago I realised that the CMRC annual conference was to be held on 27 and 28 October which was the following day after the Millions Missing on 26 October. I had a bad feeling about this given the demands of millions missing could be simply responded to and patients placated by showing the government/CMRC was doing some research for patients.

Millions Missing was obviously a great success but CMRC/ MEGA project the following day along with the petition took the shine off the week. Despite already being concerned about the CMRC I was still shocked at the petition and I feel it was very underhand and deceptive to launch the MEGA project petition the day after MillionsMissing when many people were campaigning for biomedical research as the main protest demand. Many people will have signed because of the campaign around MillionsMissing protests etc.

Read the rest here:
http://forums.phoenixrising.me/inde...-listed-as-involved.47082/page-11#post-771007

 

[Barry53]

Politely ask again. Also ask them why they deleted the first post.

And keep a copy! Include a snip of the post itself, so there is no argument it was posted.

Edit: If I'd looked a few posts further on I'd have seen you did just that

 

[trishrhymes]

I've had a go at AfME too. For the record it's currently in their visitor posts. Andy's is still there too.

 

[AndyPR]

My understanding is that there may be a discussion amongst (some of) the board members this week about a message of support in favour of Crawley.

AfME board or CMRC board?

 

[Chrisb]

My understanding is that there may be a discussion amongst (some of) the board members this week about a message of support in favour of Crawley.

Better to leave them to it then and not try to dissuade them. Let us see where they stand.

 

[TiredSam]

My understanding is that there may be a discussion amongst (some of) the board members this week about a message of support in favour of Crawley.

If we're having a PR sweep on what words or phrases we can expect such a message to contain, can I just get in there early and put a fiver on "out of context". Thanks.

 

[JohntheJack]

AfME board or CMRC board?

I heard that there may be some moves amongst the CMRC board.

 

[AndyPR]

I heard that there may be some moves amongst the CMRC board.

I suspected that was what you meant but wanted to be sure, thanks for the clarification.

 

[Barry53]

If we're having a PR sweep on what words or phrases we can expect such a message to contain, can I just get in there early and put a fiver on "out of context". Thanks.

I'll go for a safe bet, on a phrase that will not be in it: "We agree it was wrong, and apologise unreservedly".