All the important gov't and media email addresses

Rrrr

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This thread is so we can post all the important gov't and media email addresses, to help our advocacy efforts. If this thread is already started elsewhere, just let me know.
 

Rrrr

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Email addresses for DHHS, NIH, FDA, CDC

1) Department of Health and Human Services (DHHS) or Health and Human Services (HHS)
Kathleen Sebelius -Secretary DHHS (DHHS "owns" the NIH, FDA and CDC)
Internet e-mail Kathleen.Sebelius@hhs.gov 1-866-699-4872

2) National Institutes of Health (NIH)
Dr. Francis S. Collins, NIH Director francis.collins@nih.gov 301-496-2433

3) OFFICE OF THE COMMISSIONER, COMMISSIONER OF FOOD AND DRUGS (FDA)
Margaret A. Hamburg, M.D. (Commissioner of Food and Drugs) margaret.hamburg@fda.hhs.gov

4) Centers for Disease Control and Prevention (CDC) http://www.cdc.gov/
Thomas R. Frieden, MD, MPH ftdh@cdc.gov
Director, Centers for Disease Control and Prevention
Administrator, Agency for Toxic Substances and Disease Registry

MEDIA
scoop@huffingtonpost.com
tips@cnn.com
 

citybug

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Here's Koh to add to Sebelius emails. It's hard to find his emails. Now he has CFSAC listed as one of his committees like he's doing the work!

These other subcommittee level seems hard working ie Jerry Holmberg. Maybe we should bug some of the other ones. What have the offices for women's health done for us? They should bump us up to another committee or be advocating their asses off.

On August 31, 2010, the Secretary of Health and Human Services announced in the Federal Register that the Office of Public Health and Science (OPHS) is now the Office of the Assistant Secretary for Health (ASH).


U.S. Department of Health and Human Services

Howard K. Koh, M.D., M.P.H.
Assistant Secretary for Health, Office of Public Health and Science (OPHS)

E-mail: ASH@hhs.gov
Phone: (202) 690-7694


Office of the Assistant Secretary for Health

SUBORDINATE OFFICES:

Office of Adolescent Health ********
Phone:
Postal Address: 240-453-2806
Tower Building
1101 Wootton Parkway
Suite 700
Rockville, MD 20852
Web Site: http://www.hhs.gov/ophs/oah/
Director (Acting): Evelyn M. Kappeler

Office of Disease Prevention and Health Promotion
Phone:
Postal Address: 240-453-8280
Tower Building
1101 Wootton Parkway
Suite LL100
Rockville, MD 20852
Web Site: http://odphp.osophs.dhhs.gov/
Deputy Assistant Secretary: RADM Penelope Slade-Sawyer, P.T., M.S.W.

Office of Healthcare Quality Don Wright has 2 committees*****
Phone:
Postal Address: 202-401-7425
Independence Avenue SW
Room 716G
Washington, DC 20201
Web Site: http://www.hhs.gov/ophs/ohq/
Deputy Assistant Secretary: Don Wright, M.D., M.P.H.,

Office of HIV/AIDS Policy
Phone:
Postal Address: 202-690-5560
200 Independence Avenue, SW
Room 730-E
Washington, DC 20201
Web Site: http://www.hhs.gov/ophs/ohap/
Director: Christopher H. Bates

Office for Human Research Protections
Phone:
Postal Address: 240-453-6900
Tower Building
1101 Wootton Parkway
Suite 200
Rockville, MD 20852
Web Site: http://www.hhs.gov/ohrp/
Director: Jerry Menikoff, M.D., J.D.

Office of Minority Health
Phone:
Postal Address: 240-453-2882
Tower Building
1101 Wootton Parkway
Suite 600
Rockville, MD 20852
Web Site: http://minorityhealth.hhs.gov
Acting Assistant Secretary: LCDR Garth Graham, M.D., M.P.H.

Office of Population Affairs
Phone:
Postal Address: 240-453-2800
Tower Building
1101 Wootton Parkway
Suite 700
Rockville, MD 20852
Web Site: http://www.hhs.gov/opa
Deputy Assistant Secretary: Marilyn J. Keefe, M.P.H.

Office of Research Integrity *************
Phone:
Postal Address: 240-453-8200
Tower Building
1101 Wootton Parkway
Suite 750
Rockville, MD 20852
Web Site: http://ori.hhs.gov/
Director (Acting): Don Wright, M.D., M.P.H.

Office of the Surgeon General
Phone:
Postal Address: 301-443-4000
5600 Fishers Lane
Room 18-66
Rockville, MD 20857
Web Site: http://www.surgeongeneral.gov
Surgeon General: Vice Admiral Regina M. Benjamin, M.D., M.B.A.

Office on Women’s Health ************
Phone:
Postal Address: 202-690-7650
200 Independence Avenue, SW
Room 712E
Washington, DC 20201
Web Site: http://www.womenshealth.gov/owh
Acting Director Frances E. Ashe-Goins R.N., M.P.H.

Advisory Committee on Blood Safety and Availability
Phone:
Postal Address: 240-453-8803
Tower Building
1101 Wootton Parkway
Suite 250
Rockville, MD 20852
Web Site: http://www.hhs.gov/bloodsafety/
Senior Advisor for Blood Policy: Jerry A. Holmberg, Ph.D.
 

muffin

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Well done. We need to keep these and add to them as we find more media contacts and other government types that need some educating on ME/CFS.

Can we STICKY this list to keep it up at the top and not lost???
Bravo Rivka for a great job. I too have been doing my emailing but I use different headings and then do personal writing, etc. and then ask them in big red letters - What Have you Done...
Great idea. We must keep going on this. Beat them and keep beating on them.

We also need more out of the box ideas that are "free" like this. We need LOTS of this type of free advocacy to make NOISE!

And we also need the Washington Post type ADs to hit everyone. So, think up more ideas on all fronts, post them, push, remind and people will do it.

Love you Rrrr!! S.