ME/CFS must be represented!
On September 6, the Secretary of Health and Human Services disbanded the federal Chronic Fatigue Syndrome Advisory Committee (CFSAC) by allowing the charter for the committee to expire after 16 years.
The Chronic Fatigue Syndrome Advisory Committee was the only voice exclusively for the ME/CFS community in the federal government. We cannot allow the administration to silence people with ME/CFS, their loved ones, scientists, and advocates. Senator Markey is leading a bicameral (U.S. House and U.S. Senate) letter to the Department of Health and Human Services (HHS).
TAKE ACTION HERE
Use our congressional messaging form to contact your Senators and Member of Congress IMMEDIATELY and urge them to sign this letter to the Department of Health and Human Services (HHS). The letter (1) states that more must be done by HHS to address ME/CFS needs, (2) requests HHS to explain how it will fill the gap left by the September, 2018, dissolution of the Chronic Fatigue Syndrome Advisory Committee (CFSAC), and (3) poses detailed questions regarding the ME/CFS activities and plans of the National Institutes of Health and Centers for Disease Control.
SEND YOUR MESSAGE TODAY!
This is a joint action of Solve ME/CFS Initiative (SMCI), #MEAction, and the Massachusetts ME/CFS & FM Association