Not experimenting will not improve treatment of this disease. On the contrary, it will improve understanding and treatments. Without people willing to take a calculated risk our understanding will never advance. Sad but true.
It's exactly like you say.Take abilify for example, it was first tested here in this forum by Hip, in 2012!8 years before Stanford.
That's where I found it and I was convinced that it had a good chance, that's why it was only 2nd in my priority list.I was quite confident about it, I remember this clearly, and I was going to take it.
On a similar thinking to Hip, I knew pramipexole is a quite effective treatment for anhedonia and since that symptom also manifests in me/cfs I thought it might have a common cause.I was proven right, for me at least.I won't be surprised at all if this drug also proves to be effective in the future (probably enhanced by some other antiinflammatory like LDN).