A treatment that helps me tremendously

[Johannes]

Sunshine or Vitamin D helps MS patients, maybe you have MS all along. OMF reported months back 50% of patients have MS instead of ME/CFS from antibodies tests in MS diagnosis

MS was tested. I don't have it. Even my brain was scanned with MRI.

 

[Aidan Walsh]

Vit. D can help others also that havn't been diagnosed with MS. The fact that Vit. D helps someone to feel better does not mean they might have MS
.
Not sure if I'm understanding. I don't think there are antibodies test for MS?

That was what Ron Davis mentioned recently an antibodies test used for MS he also mentioned some are now on MS Medicine a specific type I do not recall now what it was

 

[Aidan Walsh]

MS was tested. I don't have it. Even my brain was scanned with MRI.

patients in the past have shown lesions in ME/CFS & they disappear. This is not an MRI diagnosis it is an antibodies test he said & many with ME/CFS have instead Ehlers Danlos Syndrome types in numerous studies

 

[Johannes]

patients in the past have shown lesions in ME/CFS & they disappear. This is not an MRI diagnosis it is an antibodies test he said & many with ME/CFS have instead Ehlers Danlos Syndrome types in numerous studies

Well, I don't have EDS either. It has been tested. My friend has it. But where I live, you don't get MS diagnosis without MRI. But what I think is, that my condition hasn't changed worse since year 2011, so if it would be MS, shouldn't my condition have been changed? Except, that I feel better than ever since 2011, after injected vitamin D and vitamin B12, and being in sunshine.

But what ever I have, it doesn't matter, because I am not able to use any oral medication. It is what it is...

 

[Aidan Walsh]

Not sure, I posted just letting you know what OMF Ron Davis found from the antibody test in 50%

 

[Nord Wolf]

I will fly to Spain again on the 23rd of September. I got my last dose of sunshine with UVI 3 one week ago, only for two hours, and before that the sun was rarely shining, so I am slowly starting to feel the difference. I need my sunshine. And it shouldn't take more than a week or two sunbathing to feel OK again.

Hey Man,
Guess you are in sunny Spain by now! Good for you! We are on the steady march towards winter up here in the mountains. Luckily it has dried out a bit so I'm able to get the slim level of UVs about 3 days a week. The rest is cloud covered and many days are too chilly for laying in the paling sun anymore.

Just returned from a week medical intensive in North Carolina. My wife and I returned home less than a week before the big hurricane decimated the western North Carolina region.

Hope this finds you recharging the old body solar batteries.

 

[Johannes]

Hey Man,
Guess you are in sunny Spain by now! Good for you! We are on the steady march towards winter up here in the mountains. Luckily it has dried out a bit so I'm able to get the slim level of UVs about 3 days a week. The rest is cloud covered and many days are too chilly for laying in the paling sun anymore.

Just returned from a week medical intensive in North Carolina. My wife and I returned home less than a week before the big hurricane decimated the western North Carolina region.

Hope this finds you recharging the old body solar batteries.

Hi @Nord Wolf

Yes, here I am, in Spain, untill to the 14th of November, and sunshine is helping nicely. And methylcobalamin injections work too. After injecting 2,5 months my anxiety and stress are gone. Sometimes I may feel a bit stressed but very rarely.

The following symptoms have disappeared with these injection and maybe because of sunshine too: depression, anxiety, psychological stress, brain fog and problems to concentrate. It may be because of sunshine but it may be that the injections help too, so that I can walk more than before without getting tired. I used to walk 2,5km a day. Now I walk some 3,5km a day, sometimes 4,0km a day without problems.

My brain work a bit better too. I can talk with people longer than before.

It will be interesting to know how I feel around the beginning of february. If the injections work I should have no problems to live at home without help. If not, I will have problems but I will also have some help. And then I fly back to Spain again around the beginning of February 2025. If the injections do not work without sunshine, then It will be hard time for me (with travelling and stuff) untill sunshine starts to work again.

 

[Johannes]

After a couple of mistakes (walking too much) I have to say that I thought that I can walk more than before, but NO! I can not.

There is also a new challenge. Before I started to inject vitamin B12, I always knew before hand if I am about to do too much, because I started to have a little anxiousness and deppression. Now, because of vitamin B12, I don't have anxiousness or deppression. So, I find out too late, that I have done too much. This leads to a mild PEM without any warning. Now I have to watch out very carefully, that I will not do too much. An Electric kickbike will help me taking the dog out with less walk. That will help.

 

[Johannes]

I have been able to walk 5000 to 11 000 steps a day during the last 10 days. This Spring I could barely walk 3500 to 4000 steps a day. I am not sure how this is possible. It is either the sunbathing that helps me more than before or the vitamin B12 injections that I have started to inject in the beginning of July. I inject 2500 mcg every second day. Or maybe they both give me such a boost. I haven't had PEM despite of walking so much. My muscles work well. My two only CFS symptoms are that I am not able to talk with people more than a couple of hours a day. Big improvement there too. And my memory hasn't improved much.

I will know on February how much these injections help, because I live in dark Finland without sunshine for December and January.

EDIT, 20th of October: 10 000 steps per day are too much. Makes me a bit tired and causes a little bit depression. My quess is that some 7000 steps per day could be my new upper limit.

 

[ruben]

I have been able to walk 5000 to 11 000 steps a day during the last 10 days. This Sring I could barely walk 3500 to 4000 steps a day. I am not sure how this is possible. It is either the sunbathing that helps me more than before or the vitamin B12 injections that I have started to inject in the beginning of July. I inject 2500 mcg every second day. Or maybe they both give me such a boost. I haven't had PEM despite of walking so much. My muscles work well. My two only CFS symptoms are that I am not able to talk with people more than a couple of hours a day. Big improvement there too. And my memory hasn't improved much.

I will know on February how much these injections help, because I live in dark Finland without sunshine for December and January.

Is it right to assume then that taking a B12 by injection is significantly superior to tablet form?

 

[Johannes]

Is it right to assume then that taking a B12 by injection is significantly superior to tablet form?

Well, all the studies that have been made, were done using injections. But some CFS patients claim that sublingual methylcobalamine should do the trick. But I wouldn't be so sure, because the dosage with the injections is so high, that no other means can provide that big of a dose.

 

[ruben]

Here in UK then how would one go about having B12 injections. I'm pretty sure that way back around 1990 I was having vitamin B injections myself. Not sure which vitamin Bs it was, if it was individual ones or a mixture of them. Anyway, I don't recall any benefit.

 

[Johannes]

Here in UK then how would one go about having B12 injections. I'm pretty sure that way back around 1990 I was having vitamin B injections myself. Not sure which vitamin Bs it was, if it was individual ones or a mixture of them. Anyway, I don't recall any benefit.

All I know is that when my dosage was high enough, I started to notice the benefits.

https://www.drmyhill.co.uk/wiki/B12_-_rationale_for_using_vitamin_B12_in_CFS

 

[ruben]

Thanks for that. So you're on 2500 mcg every other day. I live in Suffolk and wondering what sort of practitioner I'd try to find to perform this.

 

[kushami]

Thanks for that. So you're on 2500 mcg every other day. I live in Suffolk and wondering what sort of practitioner I'd try to find to perform this.

Quite a few people in the UK self inject. This forum has excellent guidance if you are interested:
https://healthunlocked.com/pasoc

(See pinned posts.)

 

[Johannes]

I flew back to Finland on the 14th of November. This Autumn was the best since 2011, when I got sick. I was feeling fine for two weeks at home. Then I got sick. I thought at first that I got a flew. Now I am thinking that it was a covid. I have been sick now for 19 days. But I am getting better. I am quite tired and feel week. I have dizziness. Part of this sickness is a bowel inflammation, which causes fatigue. So, it is hard to know how much sunshine helped me for December, because I am otherwise so sick. Let's see how is the situation at January.

Merry Christmas!