LaurelB
Senior Member
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- 139
This is a bit of an unusual topic, and I wasn't sure where to post it. 
I had a person contact me through my blog the other day. She is a songwriter/singer, and while she does not have ME/CFS herself, she has a friend who has a pretty severe case of it.
In his honor, her band (Cinder Bridge -- indie/folk) wrote a song about it called Everyone Knows About Me. All the donations/proceeds (100%) for the song will go to ME/CFS research (RESCIND).
Here's a site where you can listen to the song, download it for free, and make a donation if you feel so inclined:
http://tinyurl.com/ekamrd
Who knew there was a song out there about CFS?
Incidentally, the cover art was done by someone with ME/CFS.
Again, I don't know this person and had never heard of the band before, but had contact with her the other day through my blog. I've checked out her blog as well (http://cinderbridge.blogspot.com) and though it's mostly about her band/music, there are some posts about ME/CFS, and she seems to be quite knowledgeable and aware about research, advocacy and such. She also follows other CFS blogs to better understand the illness. She's very nice.
Anyway, here's a site I found which lists the lyrics and what Susan's goal was in terms of the message of the song.
http://annenigma.blogspot.com/2008/06/song-of-cfs-and-invisible-illness.html
The song does unfortunately mention the "yuppie flu," but please note she's trying to convey that people think they know all about it, that people minimize it/trivialize it, and think we should be able to easily climb out of it, that they think it's in our heads, we just don't want to get well, etc. I think she does a good job.
Susan told me she is performing this song (along with a few others) live on a radio station in Tucson tomorrow night (August 19th) at 5pm PST (6pm MST, 7pmCST, and 8pm EST). They hope to talk about ME/CFS a bit during the interview, if time permits. If at all interested, you can listen to it live here:
http://www.publicbroadcasting.net/kxci/ppr/index.shtml
Just thought I'd pass it on, since all proceeds go to research.
I'd be curious what people think!
I had a person contact me through my blog the other day. She is a songwriter/singer, and while she does not have ME/CFS herself, she has a friend who has a pretty severe case of it.
In his honor, her band (Cinder Bridge -- indie/folk) wrote a song about it called Everyone Knows About Me. All the donations/proceeds (100%) for the song will go to ME/CFS research (RESCIND).
Here's a site where you can listen to the song, download it for free, and make a donation if you feel so inclined:
http://tinyurl.com/ekamrd
Who knew there was a song out there about CFS?
Incidentally, the cover art was done by someone with ME/CFS.
Again, I don't know this person and had never heard of the band before, but had contact with her the other day through my blog. I've checked out her blog as well (http://cinderbridge.blogspot.com) and though it's mostly about her band/music, there are some posts about ME/CFS, and she seems to be quite knowledgeable and aware about research, advocacy and such. She also follows other CFS blogs to better understand the illness. She's very nice.
Anyway, here's a site I found which lists the lyrics and what Susan's goal was in terms of the message of the song.
http://annenigma.blogspot.com/2008/06/song-of-cfs-and-invisible-illness.html
The song does unfortunately mention the "yuppie flu," but please note she's trying to convey that people think they know all about it, that people minimize it/trivialize it, and think we should be able to easily climb out of it, that they think it's in our heads, we just don't want to get well, etc. I think she does a good job.
Susan told me she is performing this song (along with a few others) live on a radio station in Tucson tomorrow night (August 19th) at 5pm PST (6pm MST, 7pmCST, and 8pm EST). They hope to talk about ME/CFS a bit during the interview, if time permits. If at all interested, you can listen to it live here:
http://www.publicbroadcasting.net/kxci/ppr/index.shtml
Just thought I'd pass it on, since all proceeds go to research.