Freddd
Senior Member
- Messages
- 5,184
- Location
- Salt Lake City
A woman who suffered terribly for 20 years or so with 21st century mystery disease, with particularly nasty co-morbidities died about a week ago, alone, as so many of us are. She was utterly despondent over her treatment by a doctor who wouldn't even consider listening to her or examine in any way or performing certain tests because she INSISTED that she had the problems we talk about here. Her choice of words were not mine. She used language, common language amongst at least half the people here, to try to talk with a neurologist. She had the most extreme damage to the limbic system, by her responses to nutrients, that I have seen in years of this. The doctor would not even allow her to get that far. He dismissed her, calling her names, right then and there. He would not examine her. He wouldn't make any tests. He wouldn't even let her finish her story. At certain "incorrect" words he cut it off abruptly and sent her packing calling her names. One of those words that shuts doctors off is "detox". I don't know which one(s) he reacted to. She might have used more than a few. He had no concept that she was DEMONSTRATING the physiological psychology caused by the damage, rather than describing it well in a detached scientific fashion. I'm not here to invade her privacy or tell her story so I'll leave it at that. This could have happened to any of us, and has been for decades. He just didn't ever want to see her come back to his office again because she was such a PITA, as I was for 30 years.
This was probably a preventable death. All he had to do was be willing to listen and then say "I'll see if I can find any studies on it" or something like that, and maybe test for neurotransmitters or anything that might give some clues. He just had to look like he took her seriously. Instead he called it nonsense and called her names for saying it. She has probably been kicked out of as many practices as I have been.
I had to learn how to talk to doctors in person so I wouldn't immediately be shut out by their language filters. Some of the language we use will get us kicked out of the doctors office. For instance I was expelled from several practices for saying I had severe b12 deficiency symptoms while taking CyCbl since I was insisting on an IMPOSSIBILITY. I got kicked out for denying that I was an alcoholic "with all those typical blood changes". I got kicked out for lying because I had "too many symptoms to be believable". I got kicked out for refusing to accept that typical b12 deficiency neuropathies are really "conversion disorder" and not a real physical problem.
People using the word "detox" talking about the effects of glutathione, NAC, folic acid, MeCbl, methylfolate etc are pariahs. It will get you kicked out of many offices.
Be careful what language you use.
This was probably a preventable death. All he had to do was be willing to listen and then say "I'll see if I can find any studies on it" or something like that, and maybe test for neurotransmitters or anything that might give some clues. He just had to look like he took her seriously. Instead he called it nonsense and called her names for saying it. She has probably been kicked out of as many practices as I have been.
I had to learn how to talk to doctors in person so I wouldn't immediately be shut out by their language filters. Some of the language we use will get us kicked out of the doctors office. For instance I was expelled from several practices for saying I had severe b12 deficiency symptoms while taking CyCbl since I was insisting on an IMPOSSIBILITY. I got kicked out for denying that I was an alcoholic "with all those typical blood changes". I got kicked out for lying because I had "too many symptoms to be believable". I got kicked out for refusing to accept that typical b12 deficiency neuropathies are really "conversion disorder" and not a real physical problem.
People using the word "detox" talking about the effects of glutathione, NAC, folic acid, MeCbl, methylfolate etc are pariahs. It will get you kicked out of many offices.
Be careful what language you use.