Wayne
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I think this is a remarkable story. Was wondering if anybody else has heard any kind of similar story, where changing locations made a drastic difference in health.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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"The Locations Effect" is a phenomenon that is reported over and over again by CFS patients. Here is a whole board about the topic, for instance.
http://locationseffect.proboards.com/index.cgi?board=intro&action=display&thread=33
I think this is a remarkable story. Was wondering if anybody else has heard any kind of similar story, where changing locations made a drastic difference in health.
I feel unhappy with this story of recovery. Of course it's great for the boy that he recovered. He doesn't deserve a life of misery. I'm unhappy because it reminds me of the person who said "I had M.E but then I took Omega 3 supplements and it went away" sort of story.
I don't think this illness has much to do with Vitamin D either. There are so many Australian M.E patients and they have so much sunshine there. When I first got this my parents and doctors sent me to school and then pushed me for a holiday in Israel because "the sun and change of location would do me good." It made me worse.
I now live in a sunny hot climate. I find that *sensible* mild sunbathing for vitamin D just outside my flat often makes me need to lie down in a darkened room afterwards. Sometimes I even worsen after it. It is good to have vitamin D but it doesn't cure this.
Also before recovery the boy "played" guitar while lying down for *"5-6 hours a day"*. That is a heck of a lot. Even if he wasn't focusing during the strumming or just drifting off, it still sounds like he did not suffer the CCC criteria. His mother doesn't mentioned breaks inbetween "playing". He seemed to manage a terribly long flight, even if it was difficult for him. She mentions he had a 4 day crash afterwards. I'm not saying he wasn't ill, it's obvious he had a severe physical illness, it just sounds like it might be something different.
It could be intolerance to something in the boy's house like mold or something. In that case he did not have M.E. He had a severe allergy or intolerance to something in his home.
Does Costa Rica really have no people with M.E ?
More realistic gradual anecdotal improvements or proper published papers lift my spirits more and can teach us more than this.
I think people who contract Mono and display signs of CFS can be split into two groups. One can recover within 12-24 months in my experience, the other may go onto be sick for much longer.
It's because Costa Rica is hot....
Many with CFS have what some would call 'low temperature syndrome'.
So getting back to my story, I moved from northern Poland(near Baltic sea) to Malta(the island on mediterranean bellow the italy). 'Infections' disapeared imediatelly
this chap has written a protocol to correct low body temperature fixlowbodytemp.com