Hello,
Wanted to provide feedback on my present condition, with some good news also. But first have a question for those who tried the NO treatment : What are the results you felt after using ISOBIDE medicine per my recommended dosage and frequency.? Thank you and your detailed reply will be valuable to others.
My present condition;
Thank you,
- Feel zero symptoms of ME/CFS that used to be a constant disease in my past. I do feel 100% cured of CFS since Mid 2015 but not 100% cured of all disease so please note this difference. However i have plenty of energy and no more roller coaster up and downs. I work 40 hours a week easily and exercise hard with weight training and swimming 4 times weekly.
- As explained in a previous posting, my immune system response to respiratory infections is poor, this could be the result of long term damage caused by the years of Mycoplasma infections and CEBV infections. Consequently, i still catch frequent Flu or respiratory infections. II hate these infections!!!! they really detract from my potential health and energy.
- Went to www.rightdiagnosis.com to evaluate various causes immune deficiencies by using their search function. This is a valuable site for such searching as it captures practically all possible causes for an illness.
- Found that i should take all the B vitamins [ from B-1 to B-12] at medium high dosages as my symptoms showed low vitamin B absorption and intake quantity through food was lowering immune response. Also was low in iron but knew this for years. After taking these vitamins and iron, i lost about 7 pounds of fat from body and gained about three pounds muscle in just three weeks so this shows i definitely was low in B vitamins.
- Getting rid of the constant respiratory infections: Finally decided that there must be some type of long term infection in the lungs or respiratory system and its best to deal directly with that through inhaling antibacterial and anti-viral solutions. Tried using salted water in a home humidifier tabletop unit. It produces a perfect smoke like mist better than an Aerosol. However, using Saltwater, then adding boron salt did not make enough impact while taking this one week. Next i tried adding Silvered water meaning ionic silver water, but still little benefit.
- Finally, purchased an Iodine based Povidone Mouthwash "AVELON POVIDONE-IODINE 1% MOUTH WASH",and diluted it 50% with water then filled the humidifier. I breath the humidifier output fully in one Nostril, then switched to the second nostril when it starts to bother the nasal passages.. Iodine can be a little irritating, but note that i specifically used a pharmaceutical product which was developed and tested as a Mouthwash and Gargle for internal use. After that i also breathed through the mouth a few times, but i prefer not to perform too much mouth breathing as some reaches the stomach which we do not want. Not dangerous at these light mist dosages, but its best to attack the respiratory system.
- Did this iodine dosing for three days, just 10 minutes twice daily while watching TV and finally the deep sinus passages started to react and junk comes out of the nose.. Again, deep breathing the iodine water mix mist does go deeply in the lungs and kills Bacteria, Viruses and fungal infections. Don't ask me which one was causing the frequent respiratory infections, i cannot tell.
- End result is that i have no more infections and feel stronger and healthier overall. Will evaluate this improvement and come back after two months. But conclusion is that inhaling the diluted Povidine mouthwash in a humidifier does work very efficiently at killing long term superbugs that reside in the respiratory system.
Abdulrahman
Feel zero symptoms of ME/CFS that used to be a constant disease in my past. I do feel 100% cured of CFS since Mid 2015 but not 100% cured of all disease so please note this difference. However i have plenty of energy and no more roller coaster up and downs. I work 40 hours a week easily and exercise hard with weight training and swimming 4 times weekly.
What symptoms and what criteria? Fuduka? CDC? CCC? IOM? This was between sixteen to twenty years ago.1- I had 70% of the official Symptoms list for Chronic Fatigue Syndrome so I met the disease criteria. This was from years 1994 to 2001.
I just reread this thread and am even more confused as you kept changing treatments. I found the justifications for your theories even less clear.about what i take, please see the latest postings on this thread. If its confusing, just read through this complete thread again from beginning to end, it will hopefully make things clear.
I may be misunderstanding you but it seems you have started with a theory about EBV and then cherry picked information that supports that theory. That is not how science works. It's the other way around.Yes i understand the differences between CFS patients, it depends on the type of Herpes family virus that is attacking you [and what bacterial infections you may carry
@Abdulrahman
The problem with a therapy that has been tried followed by subsequent therapies as it appears in your thread, is that the last therapy tried may not be the one that has actually reduced symptoms.
An example where you sometimes see this is when someone claims they have been cured of cancer using natural cures such as Gerstin, IV Vitamin therapy etc and may be in remission as the tumor has shrunk or can't be seen on visual studies
But these stories are not always so straightforward. The reality is many of these patients started with chemotherapy, radiation, etc. and that may be the factor not the "natural" products that has reduced the symptoms. Unfortunately, this is usually short lived depending on the type of cancer. There are other reasons for this happening but this seems to be the one most relevant to this thread.
Please understand that I am only using the above as an example. It's not my intention nor will I debate the merits of alternative therapy for cancer.
This is why scientific studies are important as they can often figure out what facor is actually working.
All the therapies i have written down on this thread provided absolute reduction in the CFS illness i had. All those other non productive supplements or methods from years of experimentation, i did not mention here so as not to cause any confusion. This disease is extremely powerful and i did not a find a single silver bullet, took many activities to kill it
While I will respect someone's choices I will never respect a practioner promoting an unproven treatment that does more harm than good, delays conventional treatment or gives false hope.. Yeah, conventional medicine carries risks but at least your chances are better.However, i also accept and respect those who claim a success using alternative medicine alone to cure their cancer
Yes i understand the differences between CFS patients, it depends on the type of Herpes family virus that is attacking you [and what bacterial infections you may carry]. Those who have EBV or CMV will suffer constant respiratory illnesses like myself. Those who have HHV-6 alone, will have Neurological problems and of course extreme loss of energy.
For HHV-6 and CFS: See: https://hhv-6foundation.org/associated-conditions/hhv-6-and-chronic-fatigue-syndrome
Are you positive for HHV-6?
Abdulrahman
I haven't been tested for herpesviruses. It's a bit difficult to get a doctor agree to test for those in my country. It would probably be possible, but I wonder if there is really a value in it when about 97% of the general population has caught HHV-6 and are mounting a persistent antibody response for it. I've had tested quite high antibodies against mycoplasma pneumoniae, but no treatment ever (antibiotic or other) made the antibody response go down, so I suspect it's meaningless also.
I do have some interest in trialing Isobide, but again it's difficult for me to obtain. Two persons on this forum seem to have had some success with it (you and zzz). I'm worried though that tolerance develops, as often happens to nitric oxide supplements, which would make it useless in long-term. I also share the concerns of @barbc56: Since you tried so many natural treatm about.ents over the last years, how can you be sure which one helped, especially as your recovery took many years? Some people even spontaneously recover/improve from CFS/ME over time, without medication.
how does one receive a chronic EBV diagnosis or come to that conclusion? I have mono several years ago but what tells me that my symptoms come from chronic EBV and not something else?Hello JES,
You mentioned that most people have antibodies to HHV-6. This is true. And of course i am sure many people have antibodies to Mycoplasma Pneumonia and such people may not have CFS.
The question is: Have you read my postings on mutations of viruses and bacteria which have the same antibody signature on blood tests, but are definitely not the same microorganism because these are a similar situation to the antibiotic resistant strains of MRSA bacteria.
CFS patients carry extremely resistant strains of the Herpes Family viruses and of the various Mycoplasma bacteria.
How to kill them off? Go back and read my postings again slowly. It takes time and a lot of thinking to absorb the ideas fully. No problem there, took me many years to understand this basis and was similarly confused at first. Once I understood everything, i attacked them so hard and relentlessly that they were destroyed.
Now i have my life back!
As of this date i am free of all Chronic Fatigue symptoms particularly the viral illnesses which caused the upper respiratory infections, overall body tiredness, brain fog, feelings of constant infection agent in your body. My sleep is fine, but i do wear an anti-snoring vest which has something like rubber balls in a pouch tied to my back during sleep.
I don\t want to go in detail of what supplements i take these days, because i need to complete six months of healthy period to be able to claim major health improvements. All i can say is that i still follow a very healthy diet with organic foods, very few carbohydrates, lots of fresh and cooked vegetables, fresh onions, nuts of all types, fruits away from mealtimes, organic grape juice,lemon juice mixed with sage leaves. I also believe in heavy exercise, but this was graded and took me years to develop. I do Sandbag training 3 x weekly and swim Butterfly for 20 minutes twice weekly. Sleep eight hours per night.
Finally, for the past two months i see people catching viruses which i don't catch!!! wow, now that is something new, i actually have a working immune system...........
Abdulrahman
Hi Abdul,Hello JES,
You mentioned that most people have antibodies to HHV-6. This is true. And of course i am sure many people have antibodies to Mycoplasma Pneumonia and such people may not have CFS.
The question is: Have you read my postings on mutations of viruses and bacteria which have the same antibody signature on blood tests, but are definitely not the same microorganism because these are a similar situation to the antibiotic resistant strains of MRSA bacteria.
CFS patients carry extremely resistant strains of the Herpes Family viruses and of the various Mycoplasma bacteria.
How to kill them off? Go back and read my postings again slowly. It takes time and a lot of thinking to absorb the ideas fully. No problem there, took me many years to understand this basis and was similarly confused at first. Once I understood everything, i attacked them so hard and relentlessly that they were destroyed.
Now i have my life back!
Is it possible to chat? I dont see option for PM but is there somewhere else you may be able to be contacted?
Your post doesn't make sense. You said you were 'free of all Chronic Fatigue symptoms', but then said you don't want to go into detail because...blah, blah, blah... you needed to wait six months 'to be able to claim major health improvements, which you just CLAIMED in your previous paragraph.
And lastly, with a 'working immune system' you'd have a normal response to cold and flu viruses like other normal folks. In other words, you'd develop symptoms, get a 'decent', strong fever, be sick for a week or two, then feel better.
NOT having these normal immune reactions is one of the KEY problems one has if they have ME/CFS. So you're either still sick, or didn't have ME/CFS in the first place.
Hi Danny,
When you cure yourself of CFS-ME or at least achieve a total cure of the severe bacterial infections that are a major factor in majority of CFS-ME patients, then welcome to come and tell me what i know and don't know. I developed my own cure for dangerous strains of Mycoplasma which primarily reside in CFS patients. Also cured various HHIV infections in myself and other CFS patients.
Abdulrahman
Hi Abdul,
Is it possible to chat? I dont see option for PM but is there somewhere else you may be able to be contacted?
I appreciate all your posts across all the web. Thank you for your dedication and years of research.
I too have been in development of exactly your regimen but yours has allowed me to hone in closer and have less doubts I was heading in the correct direction.
Please let me know as soon as possible and hope you are doing excellent.
how does one receive a chronic EBV diagnosis or come to that conclusion? I have mono several years ago but what tells me that my symptoms come from chronic EBV and not something else?
Thanks