Ive been seeing a lot of people post about POTS here on PR and I am honestly a little confused about it. From my understanding it has something to do with blood volume in your body?? And how it changes/lacks change when standing??? Every time I google it I just get confused and find that everyone on here is much better at explaining things so they actually make sense, no wonder nobody understand this disease . Like is it something you test for or is just diagnosed based on symptoms?
Anyways, I am considering going to see an me/cfs specialist. I have read about a lot of people who have "POTS" and after seeing docs like Dr Kaufman (idk if he even sees new patients anymore), he actually addressed their POTS and people where actually able to get some relief.
Zero of the doctors that I have seen have ever spoken the phrase POTS, but I have a lot of symptoms that seem to be related to it (only compared to what I have found here on dr google). Like low blood pressure, dizzyness when standing (sometimes fainting), where I often need to grab onto the wall or any other object to not fall over, and my body also feels like its full of water? blown up like a little water balloon (honestly the worst symptom for me in this whole ordeal).
It would be a dream come true if I actually went to see a doc who would address AND! potentially treat this. Wouldn't solve all my problems but it would be a fabulous start.
Anyways, I am considering going to see an me/cfs specialist. I have read about a lot of people who have "POTS" and after seeing docs like Dr Kaufman (idk if he even sees new patients anymore), he actually addressed their POTS and people where actually able to get some relief.
Zero of the doctors that I have seen have ever spoken the phrase POTS, but I have a lot of symptoms that seem to be related to it (only compared to what I have found here on dr google). Like low blood pressure, dizzyness when standing (sometimes fainting), where I often need to grab onto the wall or any other object to not fall over, and my body also feels like its full of water? blown up like a little water balloon (honestly the worst symptom for me in this whole ordeal).
It would be a dream come true if I actually went to see a doc who would address AND! potentially treat this. Wouldn't solve all my problems but it would be a fabulous start.