eric_s
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I don't think asking someone about his qualifications is rude in any way. At least not if it's not done in an offending way. It helps people get a picture of the person they're dealing with.You were rude in asking for my qualifications however you try and justify your answers.
Your actions are actually equivalent to a patient thinking they can make a better diagnosis than a doctor who is trained to make a diagnosis when they based on no medical knowledge whatsoever are not.
That is what I would call being arrogant
As you say you have no knowledge of biology whatsoever let alone specialist knowledge in this area. Anyone can indeed make mistakes.I don't claim I cant.Someone with knowledge in a particular field ,however,is much more likely to be accurate than someone with no knowledge whatsoever.
You are very welcome to check the facts Eric .it would make a refreshing change.
I don't know of any scientist who does not have problems with people repeating unfounded opinions relating to a particular scientific field.
If repeated often enough and with enough vigour untrained people begin to accept groundless opinion as fact.
Everyone then starts drowning in a sea of misinformation and the science gets obscured by mythology.
The mistake that scientists have made is not challenging purveyors of groundless opinion early on to prevent said opinion doing damage in the first place
I don't think you or anyone would want to get surgery from someone who is not an MD or take a flight where the person in the cockpit does not have a licence. So i think it's a totally natural question to ask. And since you state to have a degree, why be offended? It's a reason to be proud.
If that was rude, then think about how you would have to call some of the things you say.
By saying that it was rude no matter how i justify it, you prove your way of dealing with matters and other people. Gerwyn's view is the law, what someone else says (if Gerwyn does not agree) is wrong. I will never share that view of the world, but you're free to have it. Just don't expect me to accept it.
There are many people who are not MDs who go to see a doctor and are certain they have CFS and the doctor tells them they have depression or nothing at all. So you just said that this is arrogant by those patients and that patients should not do that. You act exactly like the people you are fighting yourself.
And i did not say i have no knowledge of biology whatsoever. I said i have only basic knowledge. But it's not enough to judge these matters.
I can't check the facts. But i might ask some friends. Anyway, there are at least some examples that i can give you.
In posting #242 on this thread
http://www.forums.aboutmecfs.org/showthread.php?5031-German-study-finds-xmrv/page25
you said
This might be correct by chance but it's most probably not. And there is no way in the world how you can know this. Unless you went and counted the total number of ME patients diagnosed according to the CCC and you could with certainty determine what number of people from that group are XMRV positive (which is not possible, since there is no reliable enough test available yet).97% of ME patients diagnosed by the ccc criterea have XMRV
Since not all the doctors everywhere in the world work equally careful you can't know how many misdiagnoses are in different countries. And since at this point nobody can be absolutely sure about the prevalence of XMRV around the world and it's role in CFS, it's also impossible to compose a group that represents the global population of PWCFS diagnosed after the CCC and then get an approximative number from analyzing that group. Not to mention the uncertainty of testing for XMRV that would be the same here too.
Btw, the Science study stated a much lower figure at first (~65%, didn't check now) and then later the WPI gave a higher figure, 99%, if i remember correctly.
So i think it's unserious to make such a statement.
In the same posting, you also said
For the transmittability of the virus, that i was talking about, i don't think this is true. I think, they would check wheter the spouses/partners also have the virus, not what illnesses they develop. You were not exact there.The transmittability would be ascertained by looking at the relatives and spouses/partners of XMRV positive people and the possible illnesses caused by gene regulatory abnormalities potentially caused by a gammaretrovirus.
They could range from anxiety depression to multiple sclerosis or anything not obviously connected to XMRV.The results could be compared to matched groups of people who do not have xmrv and the illnesses that they present with
Then, in the same thread, in posting # 351 you said
I think that was in response to one of my postings, but you did not post the quote, so i'm not entirely sure.According to your assumptions 0nly one in nine people with me would have the virus.
That's not what i said. I said that according to those numbers at least one person out of 9 XMRV positive persons would get CFS. You should not mix things up. And i never said that this was a fact. It was a very simple calculation to get an idea. Just a way to see wheter it's more like 1 out of 20 or 1 out of 1000. And for that purpose it was exact enough, i think.
With the last part of your posting, i can generally agree. But just to say it again, i don't remember making statements about specific biological issues and then claiming that those were facts.
And remember. Even if someone here made a wrong statement, it would not change the course of history. The research is not done here and the decisions are not made here. This is not a specific forum about microbiology, even if those things are of course very important. This is a forum about CFS and so you will have to accept that everyone who is connected to that subject, trained or not, is free to voice his opinion. You do not have a moderator's role, neither do i.
And in response to the last sentence
i would say: This is probably something Wessely could have said if you only change some little details. See? It's not a free and democratic attitude. People may not share the same views and debate, but it's always essential that anyone who is not acting in an unacceptable way (like insulting people or flooding a forum) is free to say what he thinks.The mistake that scientists have made is not challenging purveyors of groundless opinion early on to prevent said opinion doing damage in the first place