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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I have recently added LDN (low dose naltrexone) to what I am taking. I am abit concerned with what is happening recently.
I have been taking Valcyte for 6 months now come June 3rd. So far all my readings for EBV have been 'undectectable' but recently I experienced another auto immune flare up that sidelined me for awhile again. This time tho it was not so severe but it was still bad.
Can suppressed EBV still cause an auto immune flare up ? Do I just have to give the Valcyte more time ? The worst case scenario is that if there is nothing wrong with my EBV status and there is something underlyingly wrong with my immune system, which there probably is.
Sushi what is your dose of LDN now ?
I am at 3mg of LDN now. I cannot take it at nite, it gives me insomnia. I take it during the day and oddly enuf i think it still works.