very severe

Haven't been here in a while so some background info- I care for my partner with long COVID/ME who has been fully bedbound since December. Their condition has only worsened with an onset of severe autonomic dysfunction in February. They are only able to have liquid food, cannot sit up, can't...

There was a poll in the Abilify FB group according to which 58% of the users for whom Abilify stopped working are worse than before they started it, with only a few people being better. It’s hard to follow up with those who responded to the poll because i assume many of them have left the group...

Hi, i’m either in a long, very severe crash right now or i have permanently lowered my baseline. It’s been 2-3 months with no improvement. I’m really suffering. Can barely tolerate screens, no stimulation rest 23 hours a day. Should I start LDA? I seriously cannot afford to lose any more...

I had a series of stressful events in my life that caused me to crash in early july. ever since then, every time i got PEM, i haven’t recovered from it. My baseline was so unstable it was really hard to gauge what was going to give me PEM. I went from moderate to severe to very severe in 3...

This is all a plea from one of my dearest ME friends. I care for them greatly, and it would mean the world to me if someone could help them, they are in dire need... ------- They write: A plea from a person suffering from very severe myalgic encephalopathy or M.E. The limits imposed by my...

Very Severe ME: Are Intimate Relationships Possible? On August 8th our ME community honours Severe ME Understanding and Remembrance Day, this year and every year. Rachel M. shares her thoughts on what it's like living with Very Severe ME … By Rachel M. Hello. I’m Rachel from Queensland...