• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. JasonPerth

    Reverse T3? Please help

    Hi everyone, im currently doing a protocol which i dont think is working at all. Anyway, months ago when seeing my doctor he looked into my thyroid which seemed normal besides Reverse T3 There was alot of skepticism online about Reverse T3 so i was super unsure I had 795 pmol/L when normal...
  2. M

    Should blood volume be considered when interpreting test results?

    This is very much a layman’s question. I’ve read that blood volumes in ME/CFS patients with POTS can be substantially lower than normal. I would like to know whether reduced blood volume directly reduces the effective “dose” of agents that are carried in the bloodstream, such as thyroid...
  3. GlassCannonLife

    Milk thistle alters thyroid hormone transport. (Thyroidpatients.ca, 2022)

    https://thyroidpatients.ca/2022/01/16/milk-thistle-thyroid-transport/ Very interesting new write up from the thyroidpatients.ca blog on milk thistle, namely silymarin and silychristin, and their sometimes dramatic effects on the hypothalamus-pituitary-thyroidal (HPT) axis.
  4. GlassCannonLife

    T3 Monotherapy for ME/CFS or FM?

    Hi all, I was hoping to get your thoughts on T3 monotherapy and it's use in treating both ME/CFS and fibromyalgia. I was reading this article over a year ago and it sort of slipped my mind in the last months. It is: Pure T3 Thyroid and Stories of Recovery from Chronic Fatigue Syndrome...
  5. R

    Transthyretin and the brain

    Hi everyone, I just wanted to share something that is not widely known and has been somewhat useful to me in dealing with unrelenting malaise and fatigue. It only helped a little but it has actually helped. I learned you can have a normal TSH on blood test but actually have hypothyroidism in...
  6. thingsvarious

    Cortisol brought me back to life.

    I am a medical student in my last year. I have been replacing multiple of my hormones for years now. Before I had crushing fatigue, I couldn´t function. Out of all the hormones, the biggest difference made cortisol. Because there is just SOOOO much misinformation about cortisol, I wrote a...
  7. thingsvarious

    I replace ALL my hormones. This brought me back to life. But is it sustainable for decades?

    In my opinion CFS is often (not always obviously) multiple hormone deficiency (esp. adrenals, perihperal thyroid sensitivity). I am a medical student in my last year. I replace ALL of my hormones. my energy levels went from the 5th percentile to the 95th percentile. In early twenties my life...
  8. M

    Low thyroid (t3) a result of CFS? And, does supplementation help?

    As CFS'ers, are we more prone to lower thyroid levels, specifically t3 (and maybe t4), especially the longer we are ill? And if the CFS is the cause of the lower hormone levels, does supplementation do anything? I also read an article that people who have chronic illnesses often develop lower...
  9. acrosstheveil

    Hashimoto's thyroiditis

    Anyone diagnosed with hashmito's? I have lots of symptoms of low thyroid activity and many autoimmune issues. I have seen several different doctors and they all tell me my thyroid is extremely swollen but none seem to know what to do about it. This is incredibly frustrating. Do you guys...