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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Shanti1

    Infusion time for IV saline- does anyone know what the typical infusion time is for 1L saline for ME/CFS?

    I will be trying this today and am wondering if flow rate can impact how well it works since I am gathering that some of the benefit may be from baroreceptors in the blood vessels detecting extra pressure....
  2. frozenborderline

    A radical proposal or two for ME/CFS treatment. Based on similarities btwn this and sepsis/shock

    So I agree with david bell's work about low blood volume in ME/CFS and also how the disease resembles a less emergent, slower sepsis or septic/hyoovolemic shock with adaptations that make it barely livable. Not just low blood volume, there is often high Lactate especially after activity, and...
  3. Murph

    Cardiopulmonary responses to exercise in an individual with ME/CFS during long-term treatment with intravenous saline: A case study (Davenport 2020)

    Cardiopulmonary responses to exercise in an individual with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome during long-term treatment with intravenous saline: A case study Article type: Research Article Authors: Davenport, Todd E.*; a; b | Ward, Michael...
  4. purrsian

    Is it hard to convince docs to give IV saline?

    I've got a GP appointment tomorrow and I'd like to ask about trying IV saline, even just once. I've been having GI problems so she told me to use osmolax, but I've started feeling pretty bad. Looked up how it works, which is by holding water in the intestines so it's excreted, making the stool...
  5. L

    IV Fluids for OI--how to Rx?

    Hi all, An out-of-state practitioner has recommended IV fluids for dysautonomia and chronic dehydration but neither she nor my local care provider (who is on board) seem to know how to Rx it so that it can actually be dispensed to me. My labs show very low ADH and high Osmo, so the issue of...
  6. Gingergrrl

    Poll on the effects of IV saline on ME/CFS symptoms

    This is the first poll I have ever created (and I am technically challenged with these types of things) so am hoping that it worked! I have been posting a lot about IV saline in @jeff_w thread but decided it was time to create my own thread and let him have his back! I also wanted to do a poll...