research

Some of you may remember me blabbing on about a new(ish) method for measuring blood volume becoming available as an off-the-shelf device. This paper uses the research version of the device to look at blood volume in POTS. The medical version of the device is approved and for sale in Europe...

https://meassociation.org.uk/2024/08/research-replicated-blood-based-biomarkers-for-me-cfs-not-explained-by-inactivity/ Myalgic Encephalomyelitis (ME; sometimes referred to as chronic fatigue syndrome) is a relatively common and female-biased disease of unknown pathogenesis that profoundly...

Lists current studies: https://batemanhornecenter.org/research/

Clinical trial in Germany: Estimated completion date: 2025 https://clinicaltrials.gov/study/NCT05710770 https://pubmed.ncbi.nlm.nih.gov/37835071/

Related thread: The Corrupt History of Medicine | John D. Rockefeller

Excerpt: Four years after the COVID-19 pandemic began, Long COVID remains an unsolved, complex and urgent healthcare crisis. According to the Centers for Disease Control and Prevention, 1 in 9 adults in the United States who have ever had COVID-19 continue to experience Long COVID with a wide...

Hi , I just wanted there to be a thread specifically for this important topic and a place where people can post thoughts, ideas, questions etc. I certainly have many. A good place to start is the analyses and blog from ME research UK, who consider what is being Offered and say it falls short...

The CFS community has a big problem. National Institutes of Health is the major funding body for medical research in the United States. They only fund $15 million per year (frozen) for research on HHV-6 and $9 million per year for research on CFS. The problem is that researcher Bhupesh Prusty...

Hi everyone, Please can you help me find studies / research that I can take part in that is currently ongoing in the UK. Are there any places that I can search for them easily? Thank you in advance for the replies.

I recently read an article on the Phoenix rising blog about the scientific research being done into the effectiveness of Low Dose Naltrexone (LDN) as a treatment for M.E. I'm interested in learning more and am wondering if anyone can recommend any further information on it? I'm particularly...

https://www.statnews.com/2022/03/29/nih-long-covid-sluggish-study/

Mecfs352 is a ‘thinktank’ of tertiary students in Australia (see also @MECFS352 on Twitter) that is building a portfolio of evidence-based information on ME/CFS. We identified ME/CFS as a serious medical problem in which most patients remain undiagnosed. We are seeking feedback on a medical...

A brand-new research initiative from a coalition of some of the brightest young minds in ME/CFS research:

For anyone who loves to read through research papers, this is a reminder that there are some great resources available from different ME associations. I've listed some links below. Feel free to post more links! UK ME Association...

A Unifying Hypothesis of the Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Recognitions from the finding of autoantibodies against ß2-adrenergic receptors Has anybody read this? I thought we tended more to low blood pressure than high (please correct me?). I...

Please join us on Sept 14th for Action CIND’s first annual #Run4ME. The event is a chance to raise funds for Action CIND’s Myalgic Encephalomyelitis (ME) Research Fund. Come as a participant or a spectator to cheer on our runners and walkers on a 1K/5K walk/run at Woodland Trails Scout Camp, in...

https://www.nbcnews.com/health/health-news/why-it-s-important-patients-look-their-doctor-s-note-n1019111 Sometimes it is hard to tell if your doctor actually gets what you are telling them, or if they even believe you. Having received a few shocks and surprises after reading doctors notes, I...