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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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quality of life

  1. Emeline

    A Guide to Mobility Aids for CFS

    TL;DR: If you have CFS, you will benefit from a mobility aid, now. Do not wait until you get worse. Get One Now. If you don’t want to read anything else, then if you’re independent, get a rollator, if you have a carer, get a self-propelled wheelchair. If you want both in one, there’s a...
    • Emeline
    • Thread
    • accessibility advice canes crutches lifestyle mobility aids quality of life rollators walker wheelchairs
    • Replies: 16
    • Forum: Lifestyle Management
  2. C

    Lowered Quality of Life in Long COVID Is Predicted by Affective Symptoms, Chronic Fatigue Syndrome, Inflammation and Neuroimmuno... (Maes et al, 2022)

    Lowered Quality of Life in Long COVID Is Predicted by Affective Symptoms, Chronic Fatigue Syndrome, Inflammation and Neuroimmunotoxic Pathways Abstract The physio-affective phenome of Long COVID-19 is predicted by (a) immune-inflammatory biomarkers of the acute infectious phase, including...
  3. nerd

    Editorial: Turning a Corner in ME/CFS Research

    Authors: Derek F. H. Pheby, Kenneth J. Friedman, Modra Murovska, Pawel Zalewski Published: 25 September 2021 doi: 10.3390/medicina57101012 Abstract
    • nerd
    • Thread
    • editorial funding guidelines nice post-covid quality of life taxonomy
    • Replies: 4
    • Forum: Latest ME/CFS Research
  4. frozenborderline

    ME/CFS is a living death--why mortality isnt what matters in illness advocacy

    https://openletteropenmedicinefoundation.com/me-cfs-is-a-living-death/ https://openletteropenmedicinefoundation.com/me-cfs-is-a-living-death/ The title basically speaks for itself but the article is full of facts and figures about quality of life and how we can change our rhetorical...
  5. Pyrrhus

    Parent-child discrepancies in health-related quality of life of children and adolescents with ME/CFS (Ekberg et al., 2021)

    Parent-child discrepancies in health-related quality of life of children and adolescents with ME/CFS (Ekberg et al., 2021) Krista M. Ekberg, Chelsea Torres & Leonard A. Jason https://link.springer.com/article/10.1007/s11136-021-02919-w Excerpt: