orthostatic intolerance

A bit late, but I promised to report about Mestinon Trial (@echobravo) My new GP takes M.E. seriously. :thumbsup: Not only that, he allows me to trial Mestinon without going through a specialist which would be the normal route for this kind of off-label medication use. It works well for a...

The Bateman Horne Center has posted about research using the NASA 10-minute lean test: https://batemanhornecenter.org/nasa-10-minute-lean-test-2/ Here's a quote from the web page: And here's the video from that page: I have not watched the whole thing but it looks interesting. I do...

I've got a GP appointment tomorrow and I'd like to ask about trying IV saline, even just once. I've been having GI problems so she told me to use osmolax, but I've started feeling pretty bad. Looked up how it works, which is by holding water in the intestines so it's excreted, making the stool...

I started taking midodrine yesterday. I'm after input from people who have ME and POTS and take midodrine. When you take it you're not meant to lie down for 4 hours. Now for me that's quite a long time to not lie down/put my feet up. Does taking midodrine at the right dose take away the need...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4951503/ (open access)

Shouldn't we all have fairly normal electrolyte and hydration levels?

Dr Marvin Medows is doing a trial of IV saline vs WHO oral rehydration solution (ORS) in a clinical trial in PWME+OI. He says he has preliminary data that the oral solution may be better than the IV, but it's important that it's a glucose/sodium solution. I've tried electrolyte solutions without...

Hi all, An out-of-state practitioner has recommended IV fluids for dysautonomia and chronic dehydration but neither she nor my local care provider (who is on board) seem to know how to Rx it so that it can actually be dispensed to me. My labs show very low ADH and high Osmo, so the issue of...

On another thread @Valentijn recently recommended a commercial electrolyte powder (instead of DIY) to help with OI. The "Electrolyte Stamina Power Pak" she recommended looked good but has too much Vitamin C for me, which leads to fatigue and a general blah feeling. Electromix has been popular...

This is the first poll I have ever created (and I am technically challenged with these types of things) so am hoping that it worked! I have been posting a lot about IV saline in @jeff_w thread but decided it was time to create my own thread and let him have his back! I also wanted to do a poll...