• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. W

    Copper, Thiamine, Memory Loss, Adrenal Issues

    Hi Everyone, I've been reading this forum off and on for years. There are so many knowledgable and helpful people here. My introduction post was just approved (from May), but I have other issues, and am hoping someone can help me with them, or point me in the right direction. A couple months...
  2. T

    Anyone on Progesterone?

    How can I implement progesterone if my cortisol is high. I’m afraid because progesterone converts to cortisol and I imagine that would not be a fun day. I need to use progesterone to stop bleeding. But with my severely high cortisol, i’m not sure how to do this.
  3. SWAlexander

    ME/CFS, Long COVID, Long Haulers updated disease model presentation August 2023

    If anybody has the stamina and time I like to recommend watching: "ME/CFS, Long COVID, Long Haulers updated disease model presentation August 2023" A recorded Zoom meeting with Joshua Leisk and Dr Asad Khan, providing a detailed walk-through for key aspects of the disease model, as of August...
  4. SWAlexander

    Striking Drop in Stress Hormone Predicts Long Covid in Study

    Cortisol could be used with other biomarkers for diagnosis Research identifies three potential causes of chronic symptoms Striking decreases in the stress hormone cortisol were the strongest predictor for who develops long Covid in new research that identified several potential drivers of the...
  5. T

    Sleep and Stress test results came back (cortisone, cortisol, melatonin). Trouble reading them.

    Brief history: Since I was a kid I've had trouble sleeping, anxiety and was always sensitive to the cold. As the years progressed I got more symptoms and the ones I already have slowly got worse. Now I also suffer from PCOS, depression, Tachycardia and am always tired. I told this to my PCP...
  6. thingsvarious

    Each hormone deficiency is associated with a distinct kind of fatigue. I had them all.

    Hello, I am a medical student in my last year. For a few years I have been replacing all of my major hormones (see here) and I have been both high and low in many different constellations. From all this I learned 2 things. Each hormone deficiency can cause chronic fatigue. Each hormone...
  7. thingsvarious

    Cortisol brought me back to life.

    I am a medical student in my last year. I have been replacing multiple of my hormones for years now. Before I had crushing fatigue, I couldn´t function. Out of all the hormones, the biggest difference made cortisol. Because there is just SOOOO much misinformation about cortisol, I wrote a...
  8. thingsvarious

    I replace ALL my hormones. This brought me back to life. But is it sustainable for decades?

    In my opinion CFS is often (not always obviously) multiple hormone deficiency (esp. adrenals, perihperal thyroid sensitivity). I am a medical student in my last year. I replace ALL of my hormones. my energy levels went from the 5th percentile to the 95th percentile. In early twenties my life...
  9. SeanQHX1

    Cyclical Alternating Insomnia/Sleeping

    Hi everyone again! I can't say I've had much to report regarding my illness, it's been more of the same, only increasingly worse as time progresses with most of my symptoms. But recently my insomnia seems to have went from week long episodes to a more chronic/intermittent state. Before, there...
  10. grapes

    Taking hydrocortisone before activity to prevent PEM crashes---I think that's on target!!

    A month ago, as I had reviewed in my mind all the crashes I've had that started in early 2016, it dawned on me that these crashes could be related to my cortisol levels. I even told my Functional Med doc that it's like my cortisol CRASHES after activity, and it takes days to recover from. Those...