• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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activism

  1. frozenborderline

    [Indie Band] Belle and Sebastian Frontman: "Living with ME makes me feel like a non person "

    https://www.independent.co.uk/news/uk/myalgic-encephalomyelitis-scottish-parliament-scotland-msps-holyrood-b2177301.html He's also an OMF ambassador. He's one of one of most prominent famous people with our illness. Albeit more mild than a lot of us bedridden folks. But apparently early on he...
  2. frozenborderline

    NIH misallocating funds and moving slow on Long covid research

    https://www.statnews.com/2022/03/29/nih-long-covid-sluggish-study/
  3. frozenborderline

    Looking for possible panel participants on a podcast

    Discussion re long Covid and me/cfs and the government response to these diseases. Researchers, activists and patients all welcome. The magazine that does the podcast has big circulation so its kind of a big deal that they're doing something on me/cfs
  4. frozenborderline

    An Open Letter to the Open Medicine Foundation, by Kaylin Jones

    https://openletteropenmedicinefoundation.com/an-open-letter-to-the-open-medicine-foundation-by-kaylin-jones/ Another person asking the OMF to look into mold or environmental toxins in ME/CFS. So far they haven't responded. But lets keep trying. If anyone else has experienced environmental...
    • frozenborderline
    • Thread
    • activism biotoxins enviromental sensitivity mcas me/cfs mycotoxins open medicine foundation ron davis
    • Replies: 8
    • Forum: Advocacy Projects
  5. MaximilianKohler

    Who to contact to get an FMT clinical trial with high quality donors?

    There is tremendous support for FMT being close to a panacea with the major caveat being that the donor is in perfect health, with an unperturbed, disease-resistant, curative gut microbiome. It's currently looking like fewer than 0.4% of the population qualifies: I've done DIY FMTs from 9...