The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Write new director of NIH Francis Collins

Discussion in 'Action Alerts and Advocacy' started by citybug, Jun 25, 2010.

  1. citybug

    citybug Senior Member

    New Director of NIH Francis Collins
    videos, priorities of NIH

    From Facebook WPI: Please write Dr. Francis Collins of the NIH and ask him to fund important biomedical research into Neuroimmune Disease Research.
    These are his introductory congressional hearings. Also write the committee members and your senators in US to fund XMRV/MECFS research.

    There's video or written testimony

    The Subcommittee on Health held a hearing entitled NIH in the 21st Century: The Director's Perspective on Tuesday, June 15, 2010, in room 2322 Rayburn House Office Building. The hearing examined the National Institutes of Healths research activities and priorities.

    I watched this other introductory hearing:

    MECFS seems to fit right into his interests. He mentions Autism as a priority in both.

    rare and neglected diseases
    he was head of human genome project
    drugs directed at gene mutations: Iressa drug for lung liver cancer depends EGFR gene mutation
    pancreatic cancer need solution
    TRND rare and neglected diseases
    stem cells
    finding pathogens in developing world
    innovative new research areas
  2. muffin

    muffin Senior Member

    KDP: Put this contact info for Dr. Collins of NIH elsewhere but here again. Thanks!

    Dr Francis S Collins M.D., Ph.D. NIH Director

    Collins, Francis OD Employee: 301-496-2433

    Legal Name: Dr Francis S Collins Preferred Name: Dr Francis Collins E-mail: Location: Building 1 - Shannon Building, 126
    1 Center Dr
    Bethesda, MD Mail Stop: Phone: 301-496-2433 Fax: IC: OD (Office of the Director) Organization: OFC DIR (HNA) Classification: Employee
    Francis S. Collins, M.D., Ph.D.
    NIH Director
  3. muffin

    muffin Senior Member

    Secretary Kathleen Sebelius - DHHS (or shortened to HHS):

    Remember that DHHS is the "owner" of NIH, CDC, and the following Subordinate Organizations:
    Administration for Children and Families
    Administration on Aging
    Agency for Healthcare Research and Quality
    Agency for Toxic Substances and Disease Registry
    Centers for Disease Control and Prevention
    Centers for Medicare and Medicaid Services
    Food and Drug Administration
    Health Resources and Services Administration
    Indian Health Service
    National Institutes of Health
    Program Support Center
    Substance Abuse and Mental Health Services Administration

    Secretary Kathleen Sebelius - DHHS:

    Last name Sebelius First name Kathleen
    Organization HHS/OS/IOS
    Job title Secretary HHS Room 120F
    Duty station Washington District of Columbia
    Mail stop 200 Independence Ave. SW.
    Internet e-mail
    Immediate Office of the Secretary
    Acronym list......: HHS/OS/IOS
    Phone................: 202-690-7000
    Postal address.: 200 Independence Ave. S.W. Washington, D.C. 20201
    Web site............:
  4. justinreilly

    justinreilly Senior Member

    NYC (& RI)
    Hopefully his background in genetics will make retroviruses of interest to him.
  5. citybug

    citybug Senior Member

    Yes. He's interested in genetic difference that effect medications.. so would think would be interested in research to see why some can control xmrv, or variations in patient genetics with mecfs.

    interested in through-put technologies, where they are running multiple computer assays. We are the perfect testing learning ground for advancing knowledge in science, which applies to treatment. all his interests.
  6. Jerry S

    Jerry S Senior Member

    Here's an online video of NIH director Francis Collins' interview with Charlie Rose on March 15, 2010.

    Writing Dr. Collins now would be especially timely as there appears to be some horse trading going on between the NIH and the CDC over who publishes what XMRV study and when.

    Thanks, kdp and muffin, for the contact info.

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