those who are on Xyrem would love your advice

[humanrising]

I am so sleep deprived its making me a little nuts. I have had insomnia forever and have done it all. Everything but Xyrem. I am now falling asleep during the day like a truck hits me and knocks me down but even that sleep is not long and iam not fully under. I haven't slept more then 2 hours at a time in several years.
my pain is worse, my brain is toast and I honestly feel that I won't be here much longer if I don't sleep. afraid my heart is just going to give up.
I ve been in contact with the very nice helpful people at Xyrem . They have give me names of doctors who prescribe near me but they are far and few between and interestingly enough, when I look them up the majority have the worst reviews and health grades I ve ever seen. I already feel abused my doctors and am losing the strength to deal with a series of more terrible doc's.
wondering if anyone who is on it saw someone in California they could recommend . I would also like to share what there experience was getting this prescribed. REALLY APPRECIATE YOUR THOUGHTS AND ADVICE!!! thank you and blessings!

 

[HRManager]

I haven't tried it, but this was posted on this site

https://phoenixrising.me/treating-c...fatigue-syndrome-mecfs-and-fibromyalgia-xyrem

 

[Henrik]

I think GHB has an bad reputation which doesn't seem to be deserved. I would like to see more knowledgeable people chime in, but every study I find is very positive. Unlike with say Ambien or Benzos you are actually asleep with GHB-induced sleep. As in you get REM-sleep and you feel rested the next day.

I think the problem comes not from the effect (it's great), but rather from the potential of abuse. I can definitively be addictive to some people and it got a lot of bad press for being used in some rape cases in the 90's. Having something nick named the "date-rape" drug will make doctors stop prescribing it real quick no matter how good it is.

 

[humanrising]

I haven't tried it, but this was posted on this site

https://phoenixrising.me/treating-c...fatigue-syndrome-mecfs-and-fibromyalgia-xyrem

thank you for the telling me about the post
I will be seeing a sleep doc the end of next month who is one of the few who can prescribe.... one of those i mentioned with terrible reviews....but I gotta try!
I am thinking that I might print some of the articles from the recommended post that might help convince him that I need it not only for my sleep issues but for my fibro pain.
You are absolutely right about this med having such a bad rep. I hate how these things play out. One use to be able to buy it at health food stores believe it or not. Now because of creepy terrible humans misusing it a medication that costs nothing to make.... literally " cents" a dose is one of the most expensive meds and almost impossible to get prescribed. A single 180 ml bottle is 4829.00 dollars. This med has real potential to help people with pain as well as sleep issues ( related of course) but few will ever get the chance. Praying I get the chance and that it will help me finally sleep more then 20 minutes at a time. I am really starting to worry that I am going to just drop dead from a stroke or heart attack from not sleeping.