Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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Searching for a parent of a child with CFS to tell their story

Discussion in 'Action Alerts and Advocacy' started by Lynn, Nov 20, 2010.

  1. Lynn

    Lynn Senior Member

    I represent ME/CFS Worldwide Patient Alliance (MCWPA) -- please check us out at

    As you may know, we are placing an ad in the Washington Post to bring attention to our cause. We also will be sending out a Press Release to numerous newspaper sites.

    We have need of a young volunteer who is afflicted with CFS or their parent to be a media contact should a journalist be willing to dig deeper. It is important that we let the world know the story of what it is like to be a child afflicted with CFS.

    Do you know anyone or their parents that might be interested in telling their story for a good cause? Or if you dont know someone personally, could you point me in the direction of a Doctor who treats children with MECFS?

    This campaign could do a lot for our cause.

    Warm regards,

  2. allyouneedislove08


    I would be interested in being a press contact. I am currently 21 and have had chronic fatigue syndrome since I was 14. Please let me know what I can do to help.

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