Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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ME/CFS Case Definition Survey

Discussion in 'Action Alerts and Advocacy' started by *GG*, Aug 26, 2009.

  1. *GG*

    *GG* senior member

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    Concord, NH
    .The ME/CFS Symptom Checklist is the standard guide for clinicians and research scientists for the evaluation of patients. The survey is presented here as a service to Dr. Nancy Klimas, M.D. of the University of Miami and her team of researchers who will use the collected data in their research on ME/CFS. In some cases, she may decide to share the collected data with other ME/CFS research teams. Please be advised, however, that the collected data will not be used for any other purpose and will be held in the strictest confidence. In completing the survey, you will NOT receive an automatic diagnosis, nor will you receive any sort of evaluation of your symptoms. You will, however, be advancing scientific research on ME/CFS. At the end of the survey you will have the option of adding your email address or not. By doing so, you are authorizing a member of the research team to follow up with you on this survey or invite you to participate in another study, should they consider such action appropriate. View Survey

    http://cfsknowledgecenter.ning.com/page/mecfs-case-definition-survey-1

    Hope I am not breaking some rule by posting this here?! I believe Dr Klimas is a well respected Dr for our disease?
     
  2. Cort

    Cort Phoenix Rising Founder

    We don't have those kinds of rules here - Nice survey. I took it.

    THANKS!:D
     
  3. dannybex

    dannybex Senior Member

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    Seattle
    Yes, thanks...

    ...for posting that. Was pretty easy to take...even w/my rotting brain.

    Interesting that there was no question about sudden vs gradual onset...
     
  4. Min

    Min Guest

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    UK
    thank you

    I had a long list of 'other' symptoms
     
  5. Cynthia

    Cynthia Guest

    Thank you, took it, and added a couple of others. Hope this helps research.
     

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