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Map of US Based ME/CFS, POTS, and Lyme Doctors (Feedback Please!)

Discussion in 'ME/CFS Doctors' started by Jesse2233, Oct 22, 2017.

  1. Diwi9

    Diwi9 Senior Member

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    Just thought of another one: Dr. Lisa Nagy. Don't know much about her, but she was featured on an episode of "ME/CFS Alert." I think her speciality is environmental medicine/mold.

    ETA: Her clinic is in Martha's Vineyard.
     
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  2. Jesse2233

    Jesse2233 Senior Member

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    Thanks Diwi. I'd forgotten about her, really enjoyed her interview
     
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  3. Gingergrrl

    Gingergrrl Senior Member

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    @Jesse2233 Can you add Dr. Janette Hope for the Mold/CIRS doctors in Santa Barbara, CA?
     
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  4. Hip

    Hip Senior Member

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    Looks good, Jesse, and more readable and easier on the eye than the Google maps version.
     
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  5. tudiemoore

    tudiemoore Senior Member

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    Since I know nothing about creating something like this, or anything at all re: technology :D, I will chime in as a seriously right-brained CFS-er, Lymie--

    Always hard to sort through lots of info-but visual is definitely the best-so---what about the map as a series of "overlays"?
    Or whatever the term would be--

    This would be helpful to me--
    A. Basic map showing ME/CFS docs, but if you want to know where you might find a Lyme specialist, bring in
    B. Basic map overlaid with an addition, adding docs for Lyme, if you need to look for MCAS docs, add
    C. Etc.
    This could be a simple visual and then become more and more detailed as my search continued.

    Failing to see a Lyme doc in an area I am searching, I can make a search of ME/CFS docs as a start to treatment, etc.

    I can "see" this more clearly than I can explain it!
    And maybe others wouldn't find this a benefit?
    And maybe it would be to complex to create?
    Don't know; just letting my mind meander...:rolleyes:
    tm
     
  6. tudiemoore

    tudiemoore Senior Member

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    Anne Corson, PA?
    tm
     
  7. tudiemoore

    tudiemoore Senior Member

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    Jesse2233, I didn't read this thread very carefully!
    I overlooked your statement about layering in more detailed maps for clarity. This looking more and more awesome!
    Thanks for your ideas, expertise and time-consuming work--
    tm
     
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  8. Orthrus

    Orthrus

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    I am wondering if Dr. Patricia Salvato is still practicing and still considered a good doctor for CFS (in Houston). I used to see her when I lived in TX, but it has been decades.
     
  9. nryanh94

    nryanh94

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    Pocinki has over a 6 month waiting list. In order to get on the list you have to pay $45 a month for his concierge service. At the moment they won't add anyone to that list and said to check back in 3 months, so it would probably take 9 months plus to get an appointment with him
     
  10. pibee

    pibee Senior Member

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    You dont need to bother to create European map because there are no European ME doctors, lets be honest, except KDM, .. i have nobody even to write me Rx for Valtrex..
     
  11. Hip

    Hip Senior Member

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  12. pibee

    pibee Senior Member

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    they charge it 3-4x more, so for valtrex 70 eur vs 300 eur a month, in 1 year that's 2500 eur, for that price i can fly to USA, pay consultation with ME doctor and even some testings :D

    or i can simply Photoshop my Rx... not that I would ever do it!:nerd:
     
  13. Hip

    Hip Senior Member

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    Online pharmacies selling generic drugs usually charge a lot less, eg Valtrex $1.50 for a 1000 mg tablet.
     
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  14. pibee

    pibee Senior Member

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    hm i checked 2 pharmacies you posted and it was huge price, .. will check again. i get 21 x 1000 mg for 21 eur in Austria.
     
  15. Hip

    Hip Senior Member

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    AllDayChemist is one of the very cheapest.
     
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  16. Sancar

    Sancar Sick of being sick ~ and so is my walking buddy

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  17. pibee

    pibee Senior Member

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    Phillip Battiade has no licence to practice in USA, shouldn't be on the list (also for the fun fact that he is heilpraktiker, which is basically a course, only primary school education is needed + passing extensive tests but far from university degree, is like 6months course). His role at Infusio in BH is as entrepreneur/CEO.

    Such clinics prey on our desperation, overcharge for fat stem cells, we shouldnt encourage that in any way .

    Make my day and remove that guy from the map pleaseeee
     

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