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Healthwise to "retire the GET/CBT topics" from medical content

Discussion in 'Advocacy Projects' started by Webdog, Apr 10, 2018.

  1. Webdog

    Webdog Senior Member

    One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS content.

    Healthwise provides medical content for many major healthcare corporations in the United States, including Kaiser Permanente with its 13 million members.

    Over the past 16 months, whenever a paper, letter, or Tuller blog post about GET/CBT appeared, I would send it off to Healthwise, asking them to consider removing GET/CBT from their ME/CFS content.

    Last year, after pressure by myself and others, Healthwise downgraded GET/CBT as treatments for ME/CFS. But these modules were still included in their ME/CFS content.

    Today, I got a Twitter direct message from Healthwise, soon after sending them FrankTwisk's excellent letter to The Lancet. From the message, the recent clinician summit in Salt Lake City influenced them significantly.

    Healthwise will be modifying their ME/CFS content fall of 2018, including retiring the GET/CBT topics from the ME/CFS section!

    It will likely take a few more months for major healthcare organizations to refresh their websites with the updated Healthwise content.

    Below is the anonymized Twitter direct message from my email inbox.

    healthwise.png
     
  2. Mary

    Mary Moderator

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    @Webdog - wow - Excellent job!!! :thumbsup::thumbsup::thumbsup:
     
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  3. Diwi9

    Diwi9 Administrator

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    This makes me so happy. Thank you @Webdog for staying on this.
     
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  4. lafarfelue

    lafarfelue Senior Member

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    Great work, this is really positive! Thank you for all your effort on this :D:thumbsup::trophy:
     
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  5. Jenny TipsforME

    Jenny TipsforME Senior Member

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    Congratulations!
     
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  6. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Awesome work - and inherently gratifying I bet - what ya doin' to reward yourself for the effort and success?
     
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  7. ebethc

    ebethc Senior Member

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    @Webdog thanks for your tenacity! this is a great win..

    do they syndicate their content? I did a web audit for a couple dozen medical center sites last year... Many had the same CFS content, so it seemed syndicated.. Not sure what the origin is, though..
     
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  8. boombachi

    boombachi Senior Member

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    Stunning work @Webdog. Very grateful for your efforts and persistence with this.
     
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  9. Webdog

    Webdog Senior Member

    Yes. At the bottom of the pages, you should see the trademarked Healthwise logo, a copyright statement, and the names of the content reviewers.

    For example, here are the current GET/CBT Healthwise modules on the Kaiser Permanente website:

    GET - https://healthy.kaiserpermanente.or...ncyclopedia&ctype=kb&locale=en-us&hwid=zx1021
    CBT - https://healthy.kaiserpermanente.or...ncyclopedia&ctype=kb&locale=en-us&hwid=zx1040

    Prior to the web, healthcare providers used to give out booklets with Healthwise content to patients. Perhaps some still do.
     
  10. Webdog

    Webdog Senior Member

    If you'd like to thank Healthwise for committing to remove the GET/CBT modules from their ME/CFS content, they have a "Contact Us" page. Healthwise deserves a big thanks for taking this step towards better care for ME/CFS patients.

    https://www.healthwise.org/contact.aspx
     
  11. ebethc

    ebethc Senior Member

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    How often do those websites update their content from health wise? Do u know if their agreement w health wise requires them to stay updated?

    Thanks
     
  12. Webdog

    Webdog Senior Member

    I'm sorry, but I don't know the answer to your questions. However, Kaiser Permanente did 2 updates of their Healthwise ME/CFS content last year, I believe. In March and November.
     
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  13. Webdog

    Webdog Senior Member

    Just wanted to say Healthwise told me yesterday me they are trying to get WebMD content updated.
     
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  14. Neunistiva

    Neunistiva Senior Member

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    I can't thank them because my country is not listed and they require a phone number, so I can't just pick a random country. Is there another way to thank them?
     
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  15. Webdog

    Webdog Senior Member

    If you have a Twitter account, tweet a thank you to @Healthwise
     
    Last edited: Apr 12, 2018
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  16. Neunistiva

    Neunistiva Senior Member

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  17. Webdog

    Webdog Senior Member

    The Healthwise ME/CFS content update should be pushed out to the Kaiser Permanente website in mid-November. GET and CBT will be gone.
     
  18. ebethc

    ebethc Senior Member

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    @Webdog - thanks for keeping up the fight :)
     
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  19. Webdog

    Webdog Senior Member

    Graded Exercise Therapy and Cognitive Behavioral Therapy are no longer recommended in the Healthwise content for ME/CFS on the Kaiser Permanente website. Yay!

    See for yourself at this link:

    https://healthy.kaiserpermanente.or...halomyelitis-chronic-fatigue-syndrome.hw32907

    That said, 3 issues remain that I'm working with Healthwise and Kaiser Permanente to resolve:
     
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  20. Webdog

    Webdog Senior Member

    If you are on Twitter, consider thanking @Healthwise for removing Graded Exercise Therapy and Cognitive Behavioral Therapy from their ME/CFS content and the Kaiser Permanente website.

    Alternatively, you can contact Healthwise directly on this webpage:
    https://www.healthwise.org/contact.aspx
     
    Last edited: Dec 7, 2018
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