The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.

Healthwise to "retire the GET/CBT topics" from medical content

Discussion in 'Advocacy Projects' started by Webdog, Apr 10, 2018.

  1. Webdog

    Webdog Senior Member

    One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS content.

    Healthwise provides medical content for many major healthcare corporations in the United States, including Kaiser Permanente with its 13 million members.

    Over the past 16 months, whenever a paper, letter, or Tuller blog post about GET/CBT appeared, I would send it off to Healthwise, asking them to consider removing GET/CBT from their ME/CFS content.

    Last year, after pressure by myself and others, Healthwise downgraded GET/CBT as treatments for ME/CFS. But these modules were still included in their ME/CFS content.

    Today, I got a Twitter direct message from Healthwise, soon after sending them FrankTwisk's excellent letter to The Lancet. From the message, the recent clinician summit in Salt Lake City influenced them significantly.

    Healthwise will be modifying their ME/CFS content fall of 2018, including retiring the GET/CBT topics from the ME/CFS section!

    It will likely take a few more months for major healthcare organizations to refresh their websites with the updated Healthwise content.

    Below is the anonymized Twitter direct message from my email inbox.

    healthwise.png
     
    Binkie4, panckage, pibee and 25 others like this.
  2. Mary

    Mary Moderator

    Messages:
    3,924
    Likes:
    8,644
    Southern California
    @Webdog - wow - Excellent job!!! :thumbsup::thumbsup::thumbsup:
     
    andyguitar, Mel9, boombachi and 2 others like this.
  3. Diwi9

    Diwi9 Senior Member

    Messages:
    959
    Likes:
    3,397
    USA
    This makes me so happy. Thank you @Webdog for staying on this.
     
    Mel9, boombachi, Mary and 1 other person like this.
  4. lafarfelue

    lafarfelue Senior Member

    Messages:
    294
    Likes:
    846
    Australia
    Great work, this is really positive! Thank you for all your effort on this :D:thumbsup::trophy:
     
    Mel9, boombachi, Mary and 1 other person like this.
  5. Jenny TipsforME

    Jenny TipsforME Senior Member

    Messages:
    1,143
    Likes:
    3,849
    Bristol
    Congratulations!
     
    Mel9, boombachi, Mary and 1 other person like this.
  6. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

    Messages:
    1,166
    Likes:
    4,732
    Toronto, Canada
    Awesome work - and inherently gratifying I bet - what ya doin' to reward yourself for the effort and success?
     
    andyguitar, Mel9, boombachi and 2 others like this.
  7. ebethc

    ebethc Senior Member

    Messages:
    1,495
    Likes:
    1,130
    @Webdog thanks for your tenacity! this is a great win..

    do they syndicate their content? I did a web audit for a couple dozen medical center sites last year... Many had the same CFS content, so it seemed syndicated.. Not sure what the origin is, though..
     
    Mel9 and boombachi like this.
  8. boombachi

    boombachi Senior Member

    Messages:
    302
    Likes:
    1,045
    Hampshire, UK
    Stunning work @Webdog. Very grateful for your efforts and persistence with this.
     
    Mel9 likes this.
  9. Webdog

    Webdog Senior Member

    Yes. At the bottom of the pages, you should see the trademarked Healthwise logo, a copyright statement, and the names of the content reviewers.

    For example, here are the current GET/CBT Healthwise modules on the Kaiser Permanente website:

    GET - https://healthy.kaiserpermanente.or...ncyclopedia&ctype=kb&locale=en-us&hwid=zx1021
    CBT - https://healthy.kaiserpermanente.or...ncyclopedia&ctype=kb&locale=en-us&hwid=zx1040

    Prior to the web, healthcare providers used to give out booklets with Healthwise content to patients. Perhaps some still do.
     
    andyguitar and Mel9 like this.
  10. Webdog

    Webdog Senior Member

    If you'd like to thank Healthwise for committing to remove the GET/CBT modules from their ME/CFS content, they have a "Contact Us" page. Healthwise deserves a big thanks for taking this step towards better care for ME/CFS patients.

    https://www.healthwise.org/contact.aspx
     
    andyguitar, Mel9, Neunistiva and 3 others like this.
  11. ebethc

    ebethc Senior Member

    Messages:
    1,495
    Likes:
    1,130

    How often do those websites update their content from health wise? Do u know if their agreement w health wise requires them to stay updated?

    Thanks
     
  12. Webdog

    Webdog Senior Member

    I'm sorry, but I don't know the answer to your questions. However, Kaiser Permanente did 2 updates of their Healthwise ME/CFS content last year, I believe. In March and November.
     
    Mel9, boombachi and ebethc like this.
  13. Webdog

    Webdog Senior Member

    Just wanted to say Healthwise told me yesterday me they are trying to get WebMD content updated.
     
    Mel9, lafarfelue, boombachi and 2 others like this.
  14. Neunistiva

    Neunistiva Senior Member

    Messages:
    347
    Likes:
    1,741
    I can't thank them because my country is not listed and they require a phone number, so I can't just pick a random country. Is there another way to thank them?
     
    Mel9 likes this.
  15. Webdog

    Webdog Senior Member

    If you have a Twitter account, tweet a thank you to @Healthwise
     
    Last edited: Apr 12, 2018
    Neunistiva and Mel9 like this.
  16. Neunistiva

    Neunistiva Senior Member

    Messages:
    347
    Likes:
    1,741
     

See more popular forum discussions.

Share This Page