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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Ifish.. wow. Either I have a bad flu or I'm not going through the die off phase. I had a honeymoon period if this is the case. I am still bleeding but not as bad. I have blood in mucus, but it's not bloody as before. Stopped the steroid. I am now rinsing with baby shampoo, xylitol and saline/baking soda packets when I get up. This does help clear things out and though burns, feels relieving. Then a few hours later I use chelating px and my abx. Then evening ampho b. I am not sure if this is die off and not just a flu since my son also came down with something. This is just dragging on and I have never sweat like this or had a low grade fever continually be an issue. I am lucky if I get a fever and if I do have low grade it does not last. This feels different. So wondering if you have experienced of heard of others having low grade fevers with this and sweats.
Do you eventually get used to the amphoB?? This burning is awful! My sinuses, radiating down into my teeth, and then I'm all stuffy from blowing my nose.
Also, I have had no discharge after doing the chelating px/amphoB. Isn't it supposed to be a good sign if you do, like you are getting rid of biofilm? Ifish or anyone else, do some people on Dr. Brewer's protocol not have mucous?
Sorry for the questions. My doctor is leaving his practice for a Lyme clinic in CA. I'll have to move to the care of another colleague of his, but there's quite a wait.
Do you eventually get used to the amphoB?? This burning is awful! My sinuses, radiating down into my teeth, and then I'm all stuffy from blowing my nose.
Also, I have had no discharge after doing the chelating px/amphoB. Isn't it supposed to be a good sign if you do, like you are getting rid of biofilm? Ifish or anyone else, do some people on Dr. Brewer's protocol not have mucous?
Sorry for the questions. My doctor is leaving his practice for a Lyme clinic in CA. I'll have to move to the care of another colleague of his, but there's quite a wait.
Thanks m1she11e.
I'm going on a full blown 24 hour sinus attack since doing it last night. Haven't been able to breathe through my nose, or sleep, or function. I'm beyond miserable. Not sure I'll be able to proceed with the protocol...
Do you eventually get used to the amphoB?? This burning is awful! My sinuses, radiating down into my teeth, and then I'm all stuffy from blowing my nose.
Also, I have had no discharge after doing the chelating px/amphoB. Isn't it supposed to be a good sign if you do, like you are getting rid of biofilm? Ifish or anyone else, do some people on Dr. Brewer's protocol not have mucous?
Sorry for the questions. My doctor is leaving his practice for a Lyme clinic in CA. I'll have to move to the care of another colleague of his, but there's quite a wait.
Thanks m1she11e.
I'm going on a full blown 24 hour sinus attack since doing it last night. Haven't been able to breathe through my nose, or sleep, or function. I'm beyond miserable. Not sure I'll be able to proceed with the protocol...
Skiii,I'm feeling very upset about accepting that I won't be able to continue a protocol that could potentially cure me. I will try and give the amphoB one more shot, though honestly it was beyond what I can handle- my husband actually asked if I needed to go to the ER. I think if I can get a new prescription for Azelastine that may help reduce any swelling before I do the amphoB. Is the Nystantin also atomized, and does it come from ASL? Has Brewer spread the word about the Nystantin... I'm not sure if my doctor knows of it.
I had a break from the edta and amph b for 3 days - which helped my blocked sinus recover. I took a dose today of edta and within half an hour my face flushed and felt like it was burning and my arms have come out in a blotchy rash. This seems to be an allergic reaction to me..... Has anyone else had this type of reaction before to the edta?