August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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Canadian Prime Minister: ME tweet?

Discussion in 'Advocacy Projects' started by Old Bones, Apr 30, 2016.

  1. Old Bones

    Old Bones Senior Member

    Justin Trudeau's (Canadian Prime Minister) Twitter account posted the following on April 29:

    "There’s still time to support the @cancersociety’s daffodil month! #JoinTheFight now to support Canadians living with cancer."

    To keep the momentum going, as started by @ScottTriGuy with his Patient Perspective documents and recent meeting with a Ministry of Health Policy Advisor . . . . How would we go about encouraging PM Trudeau to post a similar tweet in support of ME patients for Awareness Day on May 12?

    I have no social media presence as myself (eg. no Facebook or Twitter account), as opposed to Old Bones on PR, and haven't a clue how this could be accomplished. Any takers out there who are more "in the loop" on-line?
    SilverbladeTE and sarah darwins like this.
  2. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

    Toronto, Canada
    One thought is Thunderclap - instead of getting PM to tweet, he gets inundated (at say 8am May 12th) with a lot tweets - hopefully he re-tweets - here are the deets:

    If a tweet falls in the forest...
    Social media is an easy way to say something, but it’s a difficult way to be heard. Thunderclap is the first-ever crowdspeaking platform that helps people be heard by saying something together. It allows a single message to be mass-shared, flash mob-style, so it rises above the noise of your social networks. By boosting the signal at the same time, Thunderclap helps a single person create action and change like never before.

    You don't need a huge following for a successful Thunderclap.
    A user with 200 Facebook friends could amplify her message better than someone with 3,000 friends. It all depends on your cause's voice and shareability—and how much your friends are engaged. Thunderclap has already reached millions of people. Check out some of the successful projects on our homepage!

    The tipping point
    The beauty of Thunderclap is that it sets the goalposts: one message, one number, one date. It's a common threshold you and your supporters work toward together. It's a tangible way to measure awareness.
    panckage and Old Bones like this.

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