Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Can you help? Working on mitochondria page!

Discussion in 'Advocacy Projects' started by JaimeS, Jul 18, 2016.

  1. mfairma

    mfairma Senior Member

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    Or that one protest song? More Than a Woman('s Disease)
     
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  2. M Paine

    M Paine Senior Member

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    Auckland, New Zealand
    In regards to Maes, I know that there has been some criticism about some of his papers lacking peer review or controls. Some of the results of his work have been verified in subsequent papers such as the translocation stuff. I don't personally know the history well enough to comment on specific examples, it's hearsay to me.

    At the end of the day, regardless who it is, and what their beliefs are, it doesn't matter. Trust in Science, not Scientists. Let the papers speak for themselves. Highlight any areas where papers are controversial. I think that would be far more beneficial than censoring the paper outright. The PACE trial and papers are included in the site, with probably less emphasis on their shortcomings than I might like, but they are there. And rightly so, information is power (I just wish more was included at the top of that page to give the impression that they are widely discredited within the scientific community).

    Anyway, not to derail the thread. Thanks for the work on the Mitochondria page, would love to see a energy metabolism page in the future.
     
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  3. JaimeS

    JaimeS Senior Member

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    Add that information! Anyone can edit a page.
     
  4. M Paine

    M Paine Senior Member

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    Auckland, New Zealand
    It looks like it's fairly intentional that the page in question was made the way it is...

    http://me-pedia.org/wiki/Talk:PACE_trial#Neutrality

    Neutrality[edit]
    I worry that the previously neutral, encyclopedic tone of this page has become increasingly skeptical. I think it's better to keep tone neutral and slowly build argument in the appropriate sections (e.g., criticism, controversy) rather than editorializing from the start. We hope for a broad audience, including readers who might find an approach with a strong perspective less credible. For example, the "findings" section contains several implicit and explicit critiques that should be probably be saved for the "criticisms" section. It's important to let the reader first learn what it is that the PACE trial actually says before presenting the criticism and controversy --JenB (talk) 21:55, 6 March 2016 (PST)

    This may be helpful: https://en.wikipedia.org/wiki/Wikipedia:Neutral_point_of_view It doesn't mean that we can't include all the criticisms and all the controversy, but the sections that are for describing what the PACE trial said and found should be kept neutral and state just those facts – to be refuted in the following sections. --JenB (talk) 22:14, 6 March 2016 (PST)
     
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  5. JaimeS

    JaimeS Senior Member

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    @M Paine I just noticed that your byline is "living life on hard mode". I wonder how many old-school gamers are out there who recognize the phrase? It's incredibly apt. :)

    LOL, incredibly off-topic. Please let's not continue this discussion here!

    -J
     
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