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It might be easier to go to a naturopath. This is their bread and butter.

I don't know what you're trying to treat, but a stiff neck and headaches, combined with the antibiotics you say have helped you in the past, you may well have Lyme. Not sure what the best tests are these days. Igenex is a good lab for diagnosing tick-borne infections. The fact that garlic still...

In case you're looking to take it for adrenal issues: In my experience pantothene doesn't help rebuild stress hormones (adrenals), but pantothenic acid does. Not sure why this is. I know somebody else who has noticed this too. And I've read a couple naturopath pieces suggesting pantothenic acid...

Unfortunately the TUDCA did not improve my core ME/CFS symptoms. It merely resolved the cognitive issues I was having after starting the herbal hair treatments. And yes, I've struggled with PEM since 2006. For me what happened was a sort of sensitization to rosemary oil followed by a disruption...

@mariovitali Thanks very much for this thread. Had it not been posted on this forum I’m quite sure I wouldn’t have found my way to trying TUDCA (certainly not in a timely fashion). This would have had me continuing to suffer a significant worsening in cognitive functioning following treatments...

I passed a tilt-table test. After that he didn't bother ordering a SPECT scan; I think because I didn't fit his theory of ME. He ran a bunch of labs. My ACE was high, and he discovered I have a 2:1 AV block (heart conduction issue). He said the latter was likely congenital, though I wouldn't...

These are pictures of what happened to my clothes last summer from just a couple months of extreme avoidance. I’d owned the shoes for about 8 months prior to beginning the experiment without any change in colour. The shorts were bought new for the occasion, as were a number of shirts that had...

-Concerning binders, the fact that people with illnesses such as ours tend to have such a hard time with them should tell us there is something going on. here Healthy folks taking CSM to lower their cholesterol don't get slaughtered the way we do. Is that confirmation there's a build up of...

Already on it. Thanks.

PEM has always been a brain thing for me. Certainly physical exertion can cause it but it seems to revolve around dysregulation, mood problems, fatigue, weakness, etc, but this is perceived as central, rather than peripheral. I don't ever have muscle complaints as part of PEM. As IL-6 can cross...

Damn, I should have known you'd already been there. :)

Yes, translocation was the wrong way to put it. I understand it's toxins being released from the bacteria into circulation that is the theory. So there are two pathways for IL-6, but what I'm wondering is if one pathway could leak over onto the other. Could IL-6 from exercise also inflame a...

I imagine IL-6, because of the correlation to exercise, would be a hard one to draw conclusions from. "Did the subject take the elevator or the stairs on their way in, or even 5 hours ago?" But for this reason might have real implications for ME/CFS research. It's perhaps interesting to note...

I began having a really hard time through the winters about 5 years ago: depression, low energy and crashes. It seems to be the result of having started fairly extreme mold avoidance during the summer, and then continuing to do my best with avoidance through the winter while not being able to...

I'm pretty sure bacterial translotcation is not the primary cause of my ME/CFS. However I think it interesting that IL-6 seems to be a central cytokine in both sepsis and exercise. It can see increases up to 100x with exercise, and in this context it's working in an anti-inflammatory capacity...

By published study do you mean the 85 page hodgepodge with what looks to be Fm and CFS catchphrases sprinkled in for flavour? I admit I probably read less than 3% of it and these selections were just taken quickly and almost randomly, but here's a sample for anybody who hasn't looked at this...

I've always thought they should put more effort into studying our bodies post-mortem: look for pathogens, toxins, and changes in tissues. Nobody wants to have to do a brain biopsy on a living patient. When you begin looking at brain slices and other tissue samples unimpeded you might just begin...

There are psychedelic societies, albeit somewhat underground, that can be contacted if one is interested in exploring these options. Personally, psychedelics don't do much in the way of lasting positive effects for me, and I think there are risks that really aren't addressed in today's 'third...

If Dr Nathan is endorsing limbic retraining I'm pretty sure it's because he's seen it help people. At the time of writing I believe he'd had roughly 200 patients try it and he deemed it of value. Whether or not it's working via placebo is another matter, but I don't think that's the case...

@Hip this article might be up your alley. It's a bit of a long read, so I'll post the cheeky conclusion here. IR Saunas and 5G: Comparing EMF Exposure Both are forms of radiation and thus sources of EMF exposure. The results of this comparison are counterintuitive and intriguing...

I'm interested in the Lyme phage test as possibly being the sensitive, incontrovertible answer to getting people diagnosed. But it's going to have to be tested and confirmed by other labs before it's taken seriously. If it does turn out to be solid it might make one wonder about the "next...

Congrats, and thanks for reporting. Lisa Petrison always said that people with ME/CFS often lost their PEM when practicing extreme avoidance. I've yet to see this happen in myself but I can see how it could be possible. I will be getting back to the extreme in the next few weeks to give it...

For me it's always the 'holy shit!' treatments that stop working, and usually this happens within a month or so of starting. It's as if little bandaid treatments are allowed but chemical tweaks that go deep into the illness can't be permitted to continue working. The reason for this could be...

A lot of people say ALA is the one you want to use last as it can, in theory, grab mercury from the body and deposit it in the brain.

CDG is getting more and more attention in mycotoxin detoxification circles. It's now thought by some to be the most important detox channel for mycotoxins. It causes me pretty intense fatigue.

I would go for the herbs on this one. I'm pretty sure boron has had a strong antifungal effect in me. So strong that I'm going to have to ease my way into it. There's also caprylic acid, oregan oil, GSE, pau d'darco, etc. Detoxing mycotoxins is another matter. There's plenty on the forum about it.

Actually it's mindfulness I have a problem with. It does something to the energy in my brain and this can't be sustained. It may well be doing house cleaning of some sort, but the excitation produces a worsening in my condition. From my experimentation with norepinephrine re-uptake inhibitors...

@Sushi @Mary When you say the Gupta program made you crash, can you pinpoint what aspect of it you think was responsible? I ask because I've been doing Gupta again over the last two weeks and today I started showing signs of the nervous excitation that normally precedes a crash. However this...

I'm looking for someone in the US to help me get a package from www.alldaychemist.com, as I've been having problems of late with the re-shipping companies in the US. I'd pay for all costs of shipping and pay for $50 worth of medicines for yourself from that pharmacy; all you'd have to do is...

Indeed it's important to note that Dr Hyde helped patients in providing legitimacy to their suffering, getting them recognized by government and insurance companies. This was his forte. His focus on enteroviruses was a good one, though I would’ve liked to see him consider that these viruses...