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PACE cadets...? Because they're out of touch with reality if they think PACE can stand up to scrutiny.

@Belgiangirl, did the IVF drug you took contain Human Chorionic Gonadotropin (HCG)?

Hi @mrquasar, Do the probiotics you take contain any Aspergillus derived ingredients? We were discussing possible allergy to fungus derived ingredients in another thread. I just googled cheese and aspergillus, but didn't check the pages that came up, but just wondering if this might be...

@Jody, beautifully written. :cry:

@Forbin, I think I've read that high fructose corn syrup is also loaded with sulfites(?) so that could be a double whammy if you're sensitive to them.

Hi Peyt, this site mentions that glycogen storage disease can be a reason why patients develop hypoglycemia during a glucagon stimulation test. From page; "Hypoglycaemia may occur in: phaeochromocytoma, insulinoma, after prolonged starvation (> 48 hours) or glycogen storage diseases (inability...

Yeah, I think that's paracetamol, which is different. But don't quote me on that... Glad you have some safe foods to eat. Baked potatoes...yum... I think peas are low salicylate, but high copper. I eat them anyway, cos I like them. :-) A lot of personal care products are high salicylate too...

Hi @Misfit Toy, I wrote this, then forgot to post it...oops... I could never understand why I felt better when I ate crap, until I realised I have a salicylate sensitivity. High salicylate foods definitely make me more irritable, and spaced out, insomnia and restless legs are worse too. Do...

What a shame we couldn't hire a flash mob to form a circle on the steps of parliament, and pass a life sized stuffed toy deer to each other...while wearing ME is not MUPS t-shirts...and chanting, "Your guidelines suck, stop passing the buck!

That could be an alcohol flush, or a reaction to sulfites which most wines contain, as a preservative. Lots of other foods and beverages contain sulfites, like dried fruit, coconut, many processed products, etc.(Sulfites are a trigger for some asthmatics too.) Exercise does cause mast cells to...

You forgot tornadoes...

@TrixieStix, Glad to hear you are making progress. Sorry if I've got this wrong, but I think you mentioned kidney disease in your family? You've probably seen this already, but in case you haven't, it mentions reoccurring bacterial infections, and renal failure; Complement Factor H Deficiency...

It's so annoying, that one, isn't it. Equally annoying is when you ask the seller what these "natural" flavors are, and they can't tell you, but assure you that they are harmless, because they're "natural."

If anyone thinks enzymes grown on fungus may be a problem for them, please be aware that sometimes they can be used in the manufacture of seemingly harmless foods, like brown rice syrup. (Aspergillus.)

I do get this, but it's not constant. Facial flushing can be a symptom of mast cell disorders. Also a response to sulfites in foods and drinks. Then there's the Lupus butterfly rash, which can apparently(?) just be reddness, without an actual rash. Edit: Also, if I eat too many high sulfur...

@bspg, sorry to hear you had to go through this, but glad to hear help was at hand. I agree that the enzymes are a red flag, I think(?) it depends what they are derived from eg, a fungus, which might be a problem for some people.

Very glad to hear that @Jennifer J, hopefully the worst is over. :thumbsup:

So sorry to hear this, @Jennifer J. I don't have anything useful to say, just a :hug:

Cheesus, cockwomble is a new word for me too! Thanks for introducing me to it. Sorry you had to encounter one, but glad you stood your ground.

Me too. I've read that this can be related to allergic conditions. Something to do with cross reactivity between foods/pollens. @Booksellercate, it might be worth looking into allergic conditions, like mast cell disorders, if you haven't already (there is a separate forum here about them). Also...

Does she know you were given a fluoroquinolone for your pneumonia? From what I've read, it appears that symptoms/side effects can be delayed, so the connection isn't always made that they may be antibiotic related.

Or they might recruit dung beetles to do the dirty work for them...

@Konflict, I don't have any advice to offer on those tests, but just hoping the appointment goes well for you.:-)

@bdonovan, a lot of those veggies and herbs are high in salicylates or high in sulfur, which could cause gut symptoms if you are sensitive to them.

I know of someone who did discover that chocolate was the apparent cause of their heart symptoms. Anecdotal, of course.

I like the taste of chocolate, but it makes me feel rather ill. I'm very sensitive to caffeine, and can't drink more than one cup a day, but definitely don't get the same reaction. Chocolate is apparently high histamine, high salicylate, and high copper, so I suspect that may be why I react so...

Exactly. The stigma is still going to be the biggest barrier to treatment, in my opinion. Whenever I've mentioned research in the past, it has always been to my own detriment.

I'm wondering whether the Fluge and Mella Rituximab ME trial would be common knowledge yet within certain medical disciplines. Or is it too early for that? Does anyone know? Would most oncologists know about it? What about immunologists? Rheumatologists? Or would they only be aware of it if...

Apple cider vinegar mixed with water is a good anti-bacterial to use with a cloth, and doesn't need rinsing like soap. I use about half and half - just be sure to patch test it first to see if your skin approves of that ratio. I know ACV doesn't agree with everyone (it's too hard on my stomach...

I always thought bears ate porridge... Although this bear clearly feels the need to supplement his diet with brownies; http://www.bbc.com/news/world-us-canada-39865062