Jenny TipsforME
Senior Member
- Messages
- 1,184
- Location
- Bristol
You have probably heard that despite the huge controversy around PACE, GET etc etc NICE are still inclined towards no update to the UK clinical guidelines!
[insert expletives ]
They have however given stakeholders a two week window to change their minds.
This isn't a very accessible situation for stakeholders like us over at ME Action Network UK as patients of very few spoons.
We need persuasive, well organised evidence and we need it fast! [but we don't need loads and loads of info we can't read]
If you think you could help organise evidence send me a direct message.
[insert expletives ]
They have however given stakeholders a two week window to change their minds.
This isn't a very accessible situation for stakeholders like us over at ME Action Network UK as patients of very few spoons.
We need persuasive, well organised evidence and we need it fast! [but we don't need loads and loads of info we can't read]
If you think you could help organise evidence send me a direct message.