@Tom Kindlon. Thank you for sharing this information.
I had become weary of continually looking for this updated info. on the CFSAC web page, after being told by the OWH (via Dr. Nancy Lee) that they would not use the CFSAC listserv to notify the public when an update had been made to this page. I had also been told, by Dr. Nancy Lee, that this particular update would be posted within 2 to 3 weeks after the date of the meeting.'
However, it became rather comical when the "2 to 3 week" window to update the page turned into months of being told that the update would be coming in just another "2 to 3 weeks". When pointing out the burden this had placed on the public to obtain this update, I was told that Dr. Lee would review this policy and I would be contacted when the update happened. However, it does not appear that this has happened because the web page has been updated and I did not receive any communication from the HHS that this update had occurred.
See,
http://www.hhs.gov/advcomcfs/meetings/index.html
I was also informed by Dr. Lee that all prior public CFSAC meeting recordings were available on the CFSAC meeting page. I informed her that this statement was incorrect and no recordings were posted on this web page. I was told that her Office would investigate this further and I would be contacted when this investigation was complete. Since, I have not been contacted by her Office and the recordings now appear on this web page, perhaps the "investigation" is now complete.
It had been reported on a recent thread on this Forum that Dr. Lee would be retiring from the government.
See,
http://forums.phoenixrising.me/index.php?threads/nancy-lee-to-leave-cfsac-aug-2016.46298/
Perhaps Dr. Lee did some housekeeping before her retirement or another federal official has begun to address some of these outstanding issues. I will follow-up to see if the CFSAC list serv can be utilized in the future to inform the public when updates/changes are made to this web page.
I will also ask the HHS, via Secretary's Burwell's Office, if a possible solution to the inconsistent use of public communication by the HHS could be remedied by clear guidelines and the development of a master e-mail list serv. This master e-mail list serv could be required to be used by all the Agencies/Offices (under the HHS umbrella) for any announcements, updates and/or changes that relate to the topics of ME, ME/CFS, CFS or SEID. However I realize that such a technological feat of efficiency and open communication with the public may not be possible for this illness.