Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
have these nodules disappeared?
@Hip Have you seen mention of endolysin enzyme that is incorporated into a cream that is a new topical treatment for eczema?
I was in contact with Prof Gottfries recently, and he told me he has been testing the Russian Medgamal Staphylococcus alpha toxoid vaccine (adsorbed version with aluminum and mercury) for over 4 months now, at dose of 1.0 ml of the vaccine once every two weeks.
He said he's a little more tired when using the Russian vaccine (compared to when using Staphypan), but from what he can tell so far, it seems like the adsorbed version may be having a positive effect.
Gottfries also told me that the non-adsorbed version of the Russian vaccine was much weaker in its effects, compared to the adsorbed version.
So for all the people on this thread who, like myself, tried the non-adsorbed version of the Russian vaccine, this was the wrong vaccine!
The effects of the non-adsorbed version are too weak.
The right vaccine is the adsorbed version, available to buy here.
For those new to this vaccine, to begin with, you use this increasing dose schedule, which takes 8 weeks to compete. Thereafter, you take one full subcutaneous injection of 1.0 ml of the vaccine every two weeks
How long have you been taking the vaccine(injections )for and have you felt any improvement so far?
Results of injections of Russian Medgamal Staphylococcus toxoid vaccine (adsorbed) 1.0 ml:
Injection on 21 Feb 2017 — no benefits appeared
Injection on 07 Mar 2017 — MAJOR BENEFITS appeared from day 3 after injection, continuing to day 10
Injection on 19 Mar 2017 — MAJOR BENEFITS appeared from day 3 after injection, continuing to day 8
Injection on 30 Mar 2017 — no benefits appeared
Injection on 09 Apr 2017 — no benefits appeared
Injection on 21 Apr 2017 — no benefits appeared
It's a long and slightly complex story, but I will try to summarize briefly:
Last year (2016) I took the Russian Medgamal Staphylococcus alpha toxoid vaccine for a six month period, from March 2016 to September 2016, in order to test whether it might help my ME/CFS. This six month period began with the obligatory two month up-titration protocol, where you slowly increase the vaccine dose every week, until you reach the full dose of 1.0 ml, and thereafter you take the full 1.0 ml dose once every 3 or 4 weeks, which is what I did.
In clinical trials of the original Staphypan toxoid vaccine (which the Russian toxoid vaccine is similar to), benefits typically slowly begin to appear after around 2 weeks (in responders), but in some cases the vaccine can take up to 6 months to work.
At the end of the introductory two month up-titration period, I did get some days when my brain fog seemed a bit improved, but no spectacular improvements in ME/CFS symptoms, apart from a nice boost in mood and motivation in the days just after each vaccine injection. But no major improvements in ME/CFS symptoms like brain fog or fatigue.
But I made a mistake in my administration of the protocol, which likely explains why I did not get good results: unfortunately, after the introductory two months, I made the mistake of switching from the adsorbed version Russian vaccine that I had been using during the first two months, to the non-adsorbed version vaccine (there are actually two version of the same Russian toxoid vaccine, an adsorbed version and a non-adsorbed version).
The adsorbed vaccine contains an aluminum hydroxide adjuvant, which boosts the immune response to the toxoids in the vaccine. The non-adsorbed vaccine does not contain this adjuvant, so the immune response this version of the vaccine produces is weaker.
I did not know then, but we now know (from Prof Gottfries) that the non-adsorbed vaccine is too weak to produce any substantial benefits for ME/CFS. However, the stronger adsorbed version of the Russian vaccine (which you can buy here) does produce benefits, according to Gottfries.
So the fact that I unfortunately switched to the non-adsorbed version of the vaccine during my tests last year (2016) probably explains why I did not see any major improvements in my ME/CFS symptoms.
When I learnt (from Prof Gottfries) a few months ago that the non-adsorbed vaccine is too weak to be of benefit for ME/CFS, I decided to perform a second trial of the Russian vaccine, but this time using the stronger adsorbed version, a new trial which I began in February this year (2017).
In this new trial, I did not perform the two month up-titration protocol, because I'd already done that (it is there for safety reasons), and instead I started with the full 1.0 ml dose of the adsorbed Russian vaccine in February. And I decided to inject the Russian vaccine approximately once every two weeks (because Gottfries found the Russian adsorbed vaccine is slightly weaker than the original Staphypan vaccine).
These are my results of these recent tests of the adsorbed Russian vaccine:
These major benefits that appeared twice, after the injections on 7 March and 19 March, were really substantial: my brain fog cleared up enough so that I could perform some complex computer software programming (software used to be my profession before getting ME/CFS). Normally I am unable to do software programming, because of brain fog. So the fact that I was suddenly able to write software is a sort objective test of the improvements in mental clarity that the vaccine provided.
This improvement in mental clarity kicked in 3 days after I injected the vaccine, and this period of clarity lasted for around 8 to 10 days, before then wearing off again. The mental clarity was such that I could have probably resumed working professionally in software again, had the benefits been maintained.
The benefits were maintained for two injections in a row, but then for some reason, these benefits completely disappeared on the subsequent injections (the injections from 30 March onwards). I am not sure why these major benefits completely disappeared, but one theory I have is that some of my glass vials of vaccine were freeze damaged in the fridge (I did place my box of vaccine vials a little too close to the fridge cooling element). If a aluminum-adsorbed vaccines gets frozen, it is irrevocably damaged, and will not work properly.
So on the assumption that there may have been some freeze damage in my vials of vaccine, I have ordered some more vaccine from Russia, and when it arrives, I will be testing it again. I am expecting the new vaccine to arrive next week.
So that's the situation at the moment: I had some very promising results from the Russian adsorbed vaccine, suggesting that I am a responder to the vaccine, and that this vaccine may provide me with sufficient improvements in my ME/CFS to allow me to resume working professionally in computer software programming.
But I need to wait until the new vaccine I ordered arrives, to see if I can create these major improvements on a long term basis.
If memory serves, wasn't Gottfries able to freeze his batch and continue using it long term? Did he store his in a different way?
Also are you concerned at all about the mercy content?
And did you see any physical fatigue improvements?
Professor Gottfries mentions in his videos(youtube) that he has been taking injections once monthly for his fatigue/tiredness(?) for the past 50 plus years.Is this the same product that you are using?
http://rupharma.com/anatoxin-adsorbed/... we ship this product from 3 locations: UK, Lithuania and Russia. It was transported to UK and Lithuania by airplane in cold condition to preserve potency. Shipped with an ice pack during summer season.
For those wanting to try the vaccine in the UK there is some good news. Rupharma.com is storing some of the vaccine domestically so issues of it freezing or becoming overheated should be minimized
Would this be feasible to ship to the US?
Hopefully should be fine. Although the instructions say this Staphylococcus toxoid vaccine should be kept at a temperature between 2º and 8ºC, it seems that toxoid vaccines are pretty thermostable, and two weeks shipping at room temp (20ºC) should not reduce the potency to any significant degree. More info in this post.
For those wanting to try the vaccine in the UK there is some good news. Rupharma.com is storing some of the vaccine domestically so issues of it freezing or becoming overheated should be minimized
http://rupharma.com/anatoxin-adsorbed/
I'm confused, is the original vaccine used by Professor Gottfries? (the holy grail!)